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Old 10-14-2010, 02:56 PM #3
nemsmom nemsmom is offline
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
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You explained it great. I completely agree with you, I was also bummed when it dawned on me that MS didn't explain all of my symptoms and they figured I had something else to go with it.

For me pushing it doesn't just upset the MS, but also the HypoKalemic Periodic Paralysis.

I don't so much have overlapping symptoms. But most meds that can help with MS symptoms (like muscle relaxers) aggravate the Periodic Paralysis. The big one that messes me all up is that Steroids land me in the hospital I get so bad that I almost can't breath from the Periodic Paralysis.

I also have Postural Orthostatic Tachycardia Syndrome. Most of the treatments for that are contraindicated by the Periodic Paralysis, but with that one we deal by treating the Periodic Paralysis and dealing with what little bit of the POTS that we can't get under control with just beta blockers and Allegra.

Now they think I have something else to go with it. I don't know how much more of that I can handle, I think I'm just going to tell them no, they have to take it back. I already have enough medical issues to deal with and refuse to take any more.

I really think there should be a one illness/condition limit for each person. Nobody should have to deal with more than that.

I find though that I never know which doctor to call when I have a problem. I had to go to the dentist recently for jaw pain only to find out there was nothing there to cause the pain, yay it's just my MS! I was actually hoping it was a cavity or something, then they could fix it and I'd be done with it. But oh well.

I already have 7 specialists and don't want anymore. We are all in a holding pattern in the sense that we really aren't doing anything new for treatment (new symptom meds, but not treatment) and really nothing new, other than new symptoms.

I hope things are getting better for you.
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