There is very good information regarding ON and steroids in the Optic Neuritis Treatment trial. Worth researching!

I've never had Optic Neuritis, however since the summer of 2007 (when my major, major relapse was in full swing) I woke up to blurry/doubled vision. Noticed as soon as I turned on the TV and sat down to watch the weather channel. I couldn't read the bottom line anymore!

2 rounds of IVSM since.. I'm fairly certain I'll remain with the double vision until I see the eye specialist or maybe (cross fingers) find the right med or procedure.

Yes, vision issues are a very common MS symptom.

Try getting a new prescription for eyeglasses (progressives no less!) when your eyes are different every day. I have to take my new glasses back and try again. . . .

That's what I'm concerned will happen, and I don't believe my supplementary insurance will cover multiple pairs of glasses in 1 year.

Some days I can go without, others my vision's so blurry everything's a haze at range. A constant though is my inability to see at distance words and details, I can only manage shapes usually.

I've become quite adept at remembering who's who around work based on their shape (body frame, height) and the colors they're wearing once I've seen them close up for the day. It's discouraging, but I'm mustering through. I'll see the eye doc in December to see what she has to say about it.

well, i got good news and bad news at my PCP appt.

Good news:
1)got referral for opthamaologist, appt in december.
2)referral for Physical therapy went thru so i started back in physical therapy, should help my mobility i hope.
3)I finally have an appt with the Barrow MS Clinic on Nov 22! I'm sooo happy maybe something can be done finally!
4) blood work results: A1C 5.6! (that's my blood glucose levels, under 6 is desired. the doctor is actually cutting my metformin to 850mg from 1000! My cholesterol lvls are good, though my good cholesterol is a little low
5) this doctor seems to be on the ball, i'm getting a lot done!
6) I'm down 63 lbs since this whole saga started in july

Bad News:
1) something is definitely up with my left eye, i think it may be a blind spot caused by Optic Neuritis. it doesn't hurt though, at least.:/
2)signs of diabetic kidney disease. protein in my urine. i have definitely noticed i have been peeing a lot and it looks different. and I'm very hot all the time, so I'm drinking iced beverages all day.
3) my potassium is also low, it was 5.2 when i was in the hospital in august, and they were giving me potassium supplement drinks (yuck!) I'm not sure what it is now, but it wasn't dangerously low, so it's probably about the same. and i eat 2 bananas a day and take multi vitamins. possibly from all the water I'm drinking?


I am having the blood and urine tests again this week. we shall see .

i will update if needed when im not so tired

I went to our optometrist who told me to see a neurologist. I knew then I most likely had MS. I had blurry vision that would increase when overheated and too double vision that would come and go when tired.

Back when I had acute attacks, I've had a hallway look a mile long one afternoon. When waking to get a glass of water one night, my right eye was totally blurry...

I was unable to hold my hand up and count how many fingers were being held an inch in front of my eye. When I woke the following morning, my eyesight had gone back to normal. My neuro told me he had never seen MS hit anyone as hard as it hit me, nor have MS lift as quickly as it did for me.

One evening while watching TV, I looked out at a cone like vision; gray off the sides and a small opening in the center to see what was around me. My husband helped me to bed and when I woke the next morning my vision was back to normal.

My first 4 years of MS was one attack after another. Now, I do not have attacks. One reason I can no longer drive is because of double vision where I'm unable to tell which lane I see is actually there. Double vision quickly creeps on now when slightly tired.

Some days now I'm just tired and I have blurry vision. Still get blurry vision & double vision when overheated and/or pushed too far.

Take care.

Just wanted to add my potassium has been low for the last couple of years. At first, I ate potatoes but then was prescribed potassium pills; 10 mg daily. Over time with blood tests, my potassium prescription went to 20 mg daily.

I do not drink too much water. Beware of constipation when eating bananas. Take care and keep us posted.

My insurance covers ONE pair of glasses per calendar year. period. no matter what the excuse. If you like the frames you could just have the lenses replaced. If you have insurance you could use it to find fault with the lenses and use the insurance to replace them. (I simply cant/wont lie, so I am trapped)

I have had ON several times and get that screwy dark/blurry vision when I am over heated or even over stressed. I also find that my visual acuity stinks! I can easily get visually overwhelmed by supermarket lights, or night time traffic. my brain just cannot comprehend the mess that lays before me. I find sometimes I am staring into the face of a friend and it takes me several minutes to recall who she is! If I am rested, and non stressed it rarely happens, but if I am in a hurry or stressed I find I can lose who folks are.

Visual stuff is really scary.

I have double VERTICAL vision - does everyone else? Or is yours horizontal?

I was driving home from work one day when someone DID turn out all the lights (while driving!!) I slammed on the brakes and just stared out of my window wondering how in the hell the whole world just suddenly went totally completely black.

No headache-no warning-no nothing-as fast as a blink of the eye. It took me the longest time to suddenly realize thatit was MY VISION that had gone blind!!

AAUUGH-so, I sat there - middle of the road-wodering what the **H** to do...then my vision slowly started to turn gray and I could see outlines of shapes.

So I inched my way home - made it safely - thank god for small towns - and went to bed to sleep off the horror of it all. !!! LOL

My Primary doc could not believe I had not driven straight to the hospital ER.

All I could answer for that stupidity was "Well, it went away...and I could see again...so, I figured I didn't want to get lableled "Crazy!" It was tooo weird to go to ER - I thought.

that's scary tresa! i don't have any double vision thank jeebus! just blurred vision in my left eye