this is very distressing.
so i moved from CO to FL 3/21/10. my mail was to be forwarded by the USPS for 1 yr. (try suing them!)

with all that work with the move and the surgery in Oct i didn't think about my financial aid with the Chronic Disease Fund til the 3rd wk in Dec. i called them and obviously didn't get the renewal for the aid they sent in the mail. they sent the forms. i sent it all back. the very end of the yr.

the upshot...i called today to get the status on the application...they approved it but ran out of funds. panic is setting in. i've been on Copaxone since '03. i havn't had a flare altho i've lost function. i'm stable as things go and would like to keep it that way.

i got 2 leads i need to try tomorrow. closed for the holidays.
i thought i could also try the MS society.
does anyone have any other suggestions?

my neuro said he'd try me on the approved oral med but i don't like to try things that are new til they've been on the market for a while. i guess i could DC the C and see what happens. that's scary to me.

thanks guys

No ideas, just hopes and hugs.

NMSS.org
sharedsolutions.com


I hate that this is happening to you. perhaps your neuro knows of a patient that has gone off of it, and has extra, or his nurses may know of other support programs. Starting at the neuro nurse is always a great start.

hang in there.

One resource that may be of help is The Partnership for Prescription Assistance https://www.pparx.org/en/gethelp

The NMSS doesn't have medication assistance programs, but they may have some ideas. Best of luck with your efforts.

I'm so sorry, Judy. I don't blame you for not wanting to try the new med for a while, I feel the same way.

I don't have any better ideas than the ones already suggested.

i made some calls today.

the NMSS suggested i find out what my co-pay would be.
i called my medicare Rx plan. they said about $1300/mo. now the cost of C is a whopping $3104/mo.

then i called shared solutions back.
a woman told me to hang on another wk or so. it sounded like the CDF would be getting $$$ and i would get a call.

i'll just turn over my anxiety to God and wait and see.
thanks for your suggestions.

Judy