I do! I usually go back to bed around 6 AM and sleep pretty well until about 9 AM. I do wake up alot during the night but usually have no trouble going right back to sleep. I've always been a light sleeper. Since I can nap whenever I want to I haven't really worried about it. I don't take any kind of sleep aid. If I had to bet what was my biggest sleep "interrupter" it would be the LDN.

Yeah, the *dreams*..

This last convo with Dr S, he asked me if I wanted to change doseage because of it and I said nope, ya have to take some bad with all that good!!!

A few months before I was diagnosed, I took a couple of days of work and did nothing but sleep. My husband was worried...I never nap, and I just stayed in bed except to eat and pee.

The last few months of work, and the first few months of retirement, I slept about 10-11 hours a night. But I truly think it was the rest I needed, not so much the sleep.

Now, I'm tired but mostly not "sleepy". Sometimes I feel as though I can't keep my eyes open, but I can sit in the chair with my eyes closed and not fall asleep. It's so frutrating to describe to people. Thank God my PCP at the time of my diagnosis got it, that it wasn't a sleep disorder. I never dozed off at my desk, etc.

It's not physical fatigue, it's not sleepiness, and it's not even brain fatigue (though I do have all those). It's a fourth category, in addition to those three, that I've never quite been able to define.

Yeah, just before I retired I found I was needing to sleep longer too. I would go to bed at 9 pm and if left undisturbed, would sleep until noon the next day.
Just go with it.....it will pass. Your body needs it.

B12 500mcg every morning, B100 every afternoon & get your iron checked. Low iron = tired, weak, ect.

Hi Kitty,

Yes I've felt SO tired too. I often eat sunflower seeds while at work to help me stay awake.

Eddie, I've started taking Methyl B12 every day - first thing in the morning before I eat or drink anything. 5,000 mcg. Large dose but I need it. I felt a little better yesterday. Today, I got up at my usual time and have not felt the need for a nap. Not sure if it's the B-12 or not but Ima gonna keep taking it!

SO glad you tried it! I've taken 500mcg b12 every morning & b100 every afternoon for 3? yrs now. I hooked a friend going for masters last yr as well. I never tried more then 2 (1000mcg). I know body builders inject shoulder with it. I've tried the dropper (18,000? i.u's) but had less impact the just popping tiny 500mcg pill. I'd be lost without it. Look at my photos.

edit - and they're last yrs. i need to take new ones. i'm slightly stronger (where MS didn't steal my muscle contracting nerves) and it's only May.
I've done about 350 pool laps, 120 miles in chair for 2011 & counting. goal's 1000 laps, 200 miles.