Thanks everyone for welcoming me so warmly and for the replies Kitty: I have been to about 6 docs including a neuro and rhemotologist and no one seems to be able to find out whats wrong. I had an MRI with and without contrast which came back clear with no lesions and the nerve conduction tests etc. I havent had a spinal yet but im being refered to another neuro to maybe find some answers. Im not sure when I can rule out MS as being a possible cause. Its difficult because so many symptoms seem to come and go (although some stay) that its hard to talk to a doc without them looking at you like your a loon lol the first question almost every doc ive seen started by asking me what stressful situation happened when this started so im sure theyd love to chalk it up to stress and believe me i would too but i dont think its that simple Hopefully i can find an answer but its nice to be around such kind people, thanks again for your inputs

Here's a good website explaining the McDonald Criteria and how it's used to diagnose MS:

http://www.mult-sclerosis.org/DiagnosticCriteria.html

Welcome to our family. you don't even have to behave here!!!! I agree with the others. I feel better when I can go to the Y. The silver sneakers aqua classes really help. It is surprising how many younger people you may find in there. I used to walk in the mall. My husband would make several laps as I made my one. Or at times it wasn't even one. I remember how happy it was when I could go from one end to the other, wasn't able to go back to the beginning but I was finally able to make it to one end! Make small goals and allow yourself those days when you can't do as well as the day before.

Hi and welcome! I wish I knew what was permanent and what isn't. The pains I know are permanent, though I don't hurt every day. But I'm not sure about lead legs. I lived practically lead-leg-free for two years after a 6 mo course of solumedrol, now its back with a vengeance! Both legs and arms too.

The standard rule of thumb for a relapse is unrelenting symtems lasting three days or more. If it keeps up you may need a trip to the neuro, and some steriods.

Good luck, and hope your dx is soon.

You sound like me...any updates since then?? I'm having the LP tomorrow, even though the extreme weakness has mitigated and now I'm just in my "new normal" of regular muscle fatigue.

hey and thanx for the comments everyone, to update i went to stanford got the somasensory? test and the evoked potential which came out clear...its weird because after doing physical therapy the tingling has basically completely subsided in my legs but i now have really achy dull pain in my legs and hips...its weird to say but it feels like my bones hurt not my muscles. Its been about 5 months since my last mri so im assuming a lot could have changed since then..they already ordered an mri of my middle and lower back but im thinking that i might as well ask them to do the brain and cervical again while their at it. I havnt had an lp but my neuro says after the mri's their going to do one. The docs at stanford said i have high arches in my feet which could mean something neurological and little ability to lift my feet when i try to walk on my ankles, although i dont have problems walking or trippng. Thats pretty much the update and thanks for asking

I was dx'ed Primary progressive. Nothing ever remitted so my weakness just continues to ummm, progress. Exercise is nice but it still did not change anything. i just get weaker, number. And new sx's crop their ugly head up in my body.