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Old 12-08-2011, 08:10 AM #1
kadi1805 kadi1805 is offline
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Smirk Spinal Tap
Quote:
Originally Posted by Debbie D View Post
I was dxd at 53 but feel as if I've had it years before. The docs attributed all the symptoms to my fibromyalgia.

I've been on Copaxone for 3 years now...doing okay.

I experience a lot of pain from spasticity too...and balance issues, cognitive dysfunction, bladder/bowel...all sorts of fun. I still manage to enjoy life though.

Why have a spinal tap when you have a firm diagnosis? It's one of the diagnostic tools. If you have the dx, why go through that?

Let us know if you are going ahead with the spinal...we have advice on how to deal with it afterwards.

Glad you found us!!
I dont want to have the spinal tap but he says he want to see if it is my spine. I have to go today for a JC Virus test.
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SallyC (12-08-2011)
Old 12-08-2011, 09:51 AM #2
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Originally Posted by kadi1805 View Post
I dont want to have the spinal tap but he says he want to see if it is my spine. I have to go today for a JC Virus test.
Didn't he take an MRI of the spine too? Sounds like he wants to use all his tools..

So he is thinking about Tysabri? I hope you test negative for the JC and that TY works for you. We have a TY thread for you to check into, with people who have been on Ty for a long time.

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Old 12-09-2011, 08:01 AM #3
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Smile JC
What does it mean if I test positive for JC. I have a cold not sure if they will do the spinal today. Cant seem to get rid of the cold. Was on one antibotic and it just seems to keep comming back. This nero wants to get very aggressive now he says, I guess because all the new lesions. Thank you for taking the time to write.
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Old 12-10-2011, 07:53 AM #4
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Hi Kathy......It's very nice to meet you, but sorry it has to be here. Just want to add my support to all the rest. Did you have the spinal? I never did have one, just MRI's, and was diagnosed at 47 but am sure it was around long before that. Now at 68, I've used a powerchair for six years and deal with a lot of chronic pain. Like Sally, I take LDN and feel it slowed progression quite a bit.

All the best to you in your journey with this miserable disease. Hope to get to know you better!
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Old 12-10-2011, 08:12 AM #5
kadi1805 kadi1805 is offline
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Default Spinal Tap
Thank you for your replys, well I had the test and it was not as bad as the first spinal I had. I now know it is all in the person who performs the test.Now I wait for answers to see what kind of meds the doc puts me on.
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Old 12-10-2011, 08:20 AM #6
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Default spinal tap done
Quote:
Originally Posted by Judy2 View Post
Hi Kathy......It's very nice to meet you, but sorry it has to be here. Just want to add my support to all the rest. Did you have the spinal? I never did have one, just MRI's, and was diagnosed at 47 but am sure it was around long before that. Now at 68, I've used a powerchair for six years and deal with a lot of chronic pain. Like Sally, I take LDN and feel it slowed progression quite a bit.

All the best to you in your journey with this miserable disease. Hope to get to know you better!
yes had it done and was not bad. You said you have been in a powerchair, did you have alot of spacity in your legs and that is why you use the chair. I myself have alot of spacity in both leggs, left leg worst. At night when laying down is when I get the pain in what seems like the bones in my left leg. Now I have started to notice pain in my muscles in my right arm for know reason, I just seem to wake up with it or it wakes me up in the night. Is that part of MS.
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