Everything set for the procedure in mid August.

I am glad I am doing this. I won't wonder anymore if it actually would alleviate any of my current sx's.

Less than four weeks away and counting down...

Good Luck Aarcyn!! Keep us posted! Hugs!

Dr. Sclafani has a thread over on *edit* in which he has shared cases,






Marc "Wheelchair Kamikaze" had CCSVI done by Dr. Scalafini (some years back) but not sure if he had positive results.

Aarcyn, looking forward to what you will have to say.

I really believe that if one lives life without regrets, then one has learned nothing from what life has to offer.

Since the stats are low that something truly bad will happen, I do not want the regret about if I had only tried the procedure.

I dream of being a youtube sensation like the girl that could jump again.

Nothing ventured, nothing gained.

And speaking of regrets, I never want to jump out of an airplane at 3,000 feet again. Yes, I really did that over thirty years ago. I was a wild girl in my 20's. And I have plenty of regrets and plenty of stories.

Keeping my fingers crossed and my heart open for you dear Cyn. Make it work!!!

aarcyn - cant wait to hear how much, even if a smidge (i'd take a smidge) better you become

dej - looks like you can have it done without the dye/death which after reading your reaction to, i'd never in a million years risk the dye, and i've gone 173mph on a city highway in the past on the motorcycle I wrecked on causing complete C7 spinal cut.

@Ed. tx.

I think some of the problems arise when the procedure is not followed, the protocols are changed.

When I first began to cook, I measured the ingredients and kept to the recipe directions. Later, I might change it but to start I did what was proven to work.

Also when I had to have my gall bladder removed, I was given the option of going to a local doctor who had performed the new procedure a couple of times or drive 40 minutes into LA and have the operation done at Mt. Sinai by a surgeon who had a lot more experience.

We went into LA. Three days later I was up and washing my kitchen floor, I felt fine.

So I am going to Albany. Seems like the most positive results are coming from the doctors there.

I will let you know if I can literally jump for joy at dinner that night.

The very best wishes for that Cyn; and I agree with you with respect to going for experience rather than convenience.
With love, Erika

Hi all! SPMS Dx’d in 2011, but symptomatic for almost 2 decades, looking back on my history. Past 6 years walked with a cane and used a chair for long distances. Extreme fatigue, foot drop, pins and needles in both feet and hands, extreme depression, bouts of incontinence, heat intolerance, balance and co-ordination problems, brain fog, trouble with my swallowing reflex, and lesions on the brain in multiple MRIs seperated by time and space meeting the McDonald criteria for Dx of MS. No spinal lesions. I had never taken any disease modifying drugs, and had been following the progress of the whole CCSVI treatment over the past few years. Since I was getting worse and there was no other options, I decided to give the procedure a shot. I went in as an atheist and skeptical of a positive outcome. Boy was I shocked when I started to feel my legs normally again ON THE TABLE! Let me be clear that I am aware that my results are not typical, and certainly on the best outcome end of the spectrum. It is 3 months post treatment and all of my improvements are holding. The only symptom that hasn’t changed is trouble with swallowing occasionally. But otherwise I couldn’t be happier with my outcome. Proof is in the pudding, and I can verify 100% that my results are not some sort of placebo effect. If you have any questions please let me know. All the best to everyone, and good luck with your procedure Aarcyn

I'm too new to post links, but if anyone wants to see my before and after videos just send me a pm.

tilt