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Old 02-15-2012, 08:15 AM #1
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Default The headaches are back

ok, im officially sick of this. I am having headaches again. My eyes hurt to move, I wake each morning with a mind numbing headache, and its followed each day with struggles to get from one to the next. Some are visual migraines, and some are plain old headaches.

I dont have sinus trouble. I dont have a fever. I just got over ON, and dont think its that again, but have an MD appointment next week with the eye surgeon.

What are your headache tips and tricks. Im so tired of this! What do you do for your own headaches?
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Old 02-15-2012, 12:12 PM #2
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Sorry about the headaches and eye pain, Deij. I take aspirin for regular headaches- works fast- don't suppose you have that kind of HA. And my other head pain is TN and that is a whole other trip w mostly Tegretol.

The "hurts when I move my eyes" part sounds like ON. Hope not.
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Old 02-15-2012, 12:55 PM #3
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((((Dej)))) So sorry, on top of everything else, that stinks..
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Old 02-15-2012, 01:37 PM #4
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The day is over for me. Went to the Chiro and that helped. Had a small lunch and that made my tummy feel better, but got home to be ambushed by my son with relationship troubles. He really needed someone to listen, so I kept my dark glasses on so he couldnt see my red eyes, and I invited him in, sat him down, and listened. Simply listened. Sometimes the best thing we can say is nothing at all. I gave a couple of tiny comments, but for the most part, I kept silent and let him work it out in his own head.

Im going to soak in a warm bath, throw on my jammies, and take drugs, and go to sleep! Sleep is one of the only ways to break one of these things for me.

Jack the cat got a new cardboard scratcher so he is happily digging it to pieces, and will soon seek sun. Im so pleased with him.

Good night.
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Old 02-15-2012, 08:05 PM #5
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Dej - So sorry about the headache. I don't get many headaches and the ones I do get are mostly sinus headaches. I've had a couple of migraines in my life and that's it. DD20 gets headaches a lot. For sinus headaches she takes ibuprofen. For migraines, she takes Extra Strength Tylenol. But, the Tylenol sometimes is not enough for her. Warm compresses helps her sometimes. Sitting in a dark quiet room helps her too.

I hope you start feeling better soon.
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Old 02-15-2012, 09:34 PM #6
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I get migraines sometimes. My neuro gave me a Rx for something called "Midrin". It's apparently an older migraine medication. It works great for me.

When I had optic neuritis a couple of years ago and my optic nerve felt like it was trying to make my eyeballs explode, the Midrin actually helped some. Didnt take it all away, but made it mostly bearable as long as I wasnt out in the bright sunlight.
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Old 02-16-2012, 11:42 AM #7
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Ann - I read an article about music as an aid for pain and pain related anxiety. It actually was very effective according to a study that was done. I wish I could remember where I read that article. It may have been a link from NewsBot on here. If I find it I will post it. YouTube has lots of great relaxation music and some are hours long. Like you, I don't want a hard beat or voices or anything like that, just the soothing combining of notes and instruments.

Dej - Hope you start to feel better as the day goes on.
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Old 02-16-2012, 08:43 PM #8
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Oh my gosh Dej do tell me if you find something that works. Ever since my attack of ON this past October, my eye has not fully 'healed', I was off work 2.5 months to let it heal, limited my time on computers, tv, etc.

I am back to waking up every morning with headaches now that I'm back to work. Just saw the eye specialist yesterday. She's going to see me again in April, but she says the nerve looks good. Waiting for another MRI, grumble...

I too am SICK of these dreadful morning headaches and migraines (not just the head pain - go away floaters, dancing spots, visual disturbances, numbing limbs, slurred speech - I'm done with you all!!!).

It's daily. It's been daily for months before the ON attack. The only time I wasn't getting the headaches was after a long period of 'rest' from looking at anything (literally). And I was fresh off IVSM for about 3 weeks - the sweet spot for me.

Now it feels like it's all going back to square 1 again, slowly but surely. Just wanted to let you know, while I am fortunate I can muster a work day out of this mess, You're not alone where the daily AM headaches are concerned.

I find that sometimes walking first thing helps a little bit. Eventually over the day, they begin to fade, but it takes several hours.
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Old 02-17-2012, 08:16 AM #9
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laura describes it perfectly! I gave myself a complete electonic break, and didnt play games, watch movies, read books, or try to process anything visually. Life doesnt work like that tho. I cannot keep on my dark googles that only let in 4% of the light forever. When I take off my glasses, I am sea sick, my eyes really hurt, even just to move them, and I wake every morning with a horrible headache.

I am photo phobic, cant stand the smallest amounts of light as I feel they are burring into my brain and blistering my optic nerve. My eyes are soooo painful! it burrows into my brain and to do little things like cough make my brain feel bruised, and sore. If I blow my nose I have to hang on or sit down because it really hurts my brain to increase the pressure inside my head. sometimes just the act of swallowing makes my brain feel bruised and upset.

I again woke with a headache. im quite tired of this now.
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Old 02-17-2012, 04:20 PM #10
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Quote:
Originally Posted by Dejibo View Post
laura describes it perfectly! I gave myself a complete electonic break, and didnt play games, watch movies, read books, or try to process anything visually. Life doesnt work like that tho. I cannot keep on my dark googles that only let in 4% of the light forever. When I take off my glasses, I am sea sick, my eyes really hurt, even just to move them, and I wake every morning with a horrible headache.

I am photo phobic, cant stand the smallest amounts of light as I feel they are burring into my brain and blistering my optic nerve. My eyes are soooo painful! it burrows into my brain and to do little things like cough make my brain feel bruised, and sore. If I blow my nose I have to hang on or sit down because it really hurts my brain to increase the pressure inside my head. sometimes just the act of swallowing makes my brain feel bruised and upset.

I again woke with a headache. im quite tired of this now.

That's it, that's the headache! I'm not as sensitive to the light as you but the sensitivity is there.

So far Elavil has been the only thing to take the edge off and makes it bearable.

I hope you find something that helps!
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