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06-19-2012, 09:07 PM
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I went for my three month follow-up with my neuro today.
She says my MRI looked good. Same number of lesions as before, not any bigger than before and none enhancing. Then she asked how I was feeling. I told her not as good as my MRI shows. She asked how, I told her about all the visual issues and the horrible muscle spasms. But I can't do any more muscle relaxers than what I'm on because they aggravate the periodic paralysis. So I can't even take them during the day. She asked if I had tried tonic water. I told her I'd never heard of trying it for muscle cramps/spasms. She said to try half of an 8 or 12 oz bottle once or twice a day and put a few drops of lime juice or some cranberry juice in it. She said it might help. So I bought some today and we will see if it works! Other than that we are just staying the course again and I go back to see her in September. Things keep getting worse but we just don't know what else to do since every time we change something with me I tend to fall apart! 
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06-20-2012, 04:12 PM
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The tonic water contains a small amount of quinnine. My cardio told me about it many years ago, and suggested the small amount for leg cramps. It does help me. You may know of a drink, Gin & Tonic? Same stuff, better taste.
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Barb |
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06-20-2012, 04:28 PM
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I tried the tonic water and could never get past that aweful taste! I even mixed it with other liquids like o.j, pop, etc. Nothing masked the taste. I did it for like 4 months and it didnt do anything for me.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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| "Thanks for this!" says: | ANNagain (06-20-2012), Dejibo (06-21-2012), nemsmom (06-20-2012), NurseNancy (06-20-2012), SallyC (06-20-2012) |
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06-20-2012, 04:43 PM
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Quote:
It is helping with the uncontrollable stretching. But I'm thinking it's messing with my bowels. If not this is awful coincidental. |
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06-20-2012, 04:53 PM
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Grand Magnate
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i hope you will be feeling better soon.
it sounds like your dr listens to you. that's a good thing.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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06-20-2012, 05:09 PM
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Senior Member
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Great point, Judy!
ANN |
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| "Thanks for this!" says: | SallyC (06-20-2012) |
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06-20-2012, 05:51 PM
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In Remembrance
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 (((((Newsmon)))))
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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| "Thanks for this!" says: | nemsmom (06-20-2012) |
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