I went for my three month follow-up with my neuro today.

She says my MRI looked good. Same number of lesions as before, not any bigger than before and none enhancing.

Then she asked how I was feeling. I told her not as good as my MRI shows. She asked how, I told her about all the visual issues and the horrible muscle spasms.

But I can't do any more muscle relaxers than what I'm on because they aggravate the periodic paralysis. So I can't even take them during the day.

She asked if I had tried tonic water. I told her I'd never heard of trying it for muscle cramps/spasms. She said to try half of an 8 or 12 oz bottle once or twice a day and put a few drops of lime juice or some cranberry juice in it. She said it might help.

So I bought some today and we will see if it works!

Other than that we are just staying the course again and I go back to see her in September. Things keep getting worse but we just don't know what else to do since every time we change something with me I tend to fall apart!

The tonic water contains a small amount of quinnine. My cardio told me about it many years ago, and suggested the small amount for leg cramps. It does help me. You may know of a drink, Gin & Tonic? Same stuff, better taste.

I tried the tonic water and could never get past that aweful taste! I even mixed it with other liquids like o.j, pop, etc. Nothing masked the taste. I did it for like 4 months and it didnt do anything for me.

Yeah the taste is absolutely horrible.

It is helping with the uncontrollable stretching. But I'm thinking it's messing with my bowels. If not this is awful coincidental.

i hope you will be feeling better soon.
it sounds like your dr listens to you. that's a good thing.

Great point, Judy!

ANN