Hi all,

I know I have asked this before, but we went to see the neoro today,
A few weeks ago I asked if burst open toes are part of PPMS,
And today I got confirmation from the neuro that indeed it is, but will go for a second opinion
Next month.

A few weeks ago she had one open toe, now she has 3.

I also want to apologize for my previous thread, I was on a all time low
And felt I could not cope, I suspect that I may be suffering from depression.

Will keep you posted on what the second opinion is next month

Sadsister

I'm sorry to hear your sister is having such difficulties. It is hard on you also, because you care so much for her! to you!

It sounds like there is more going on in your sister's body than just MS. I don't really know how open sores on feet are a symptom of PPMS, or any other form of the disease.

This neurologist isn't suggesting she be seen by any other specialist? I've never thought of a neuro for treating open wounds.

Can you be a little more descriptive? Is it like an ulcer? A hole in the toe?

I have one in my left big toe. I had it in April 2007, same place, and it took several months to clear up. I put an antibiotic on it daily and bandage it when I'm at work or out and soak my foot in epsom salts. This is what the foot doctor told me to do back in 2007. Also - no colored socks, especially black. The dye might leech into the ulcer.

I never considered it being due to MS but my April 2007 flare was by far my worst one to date (24.5 years with MS). It was the beginning of the permanent pain in both feet.

How did the neuro describe the relationship between the burst toe and MS? I've never heard of this.

Hope your sister is doing better.

Tom

I have not heard of this with MS either. I have heard of neuropathy in the toes with MS, and it's possible that if toes are numb a person might stub them and wound them. Neuropathy can be VERY painful.

When I had Shingles neuropathy very badly in my left leg and foot, I had only miniscule little rashes, not "burst open" ones. Worst pain I have ever had but no sores.

JMO but MS does cause cold toes (icy sometimes) and extreme cold can cause skin on extremities to "burst"???

(((((SadSister)))))

Thank you to all,

Nice to meet you Tom, don't know if I can say its ulcer like,
It burst open right next to the nail and it sort of looks like the
Fat is coming out of it, it almost looks like she bumped it, only she
Didn't. Its on both her big toes and one middle toe.

The neuro didn't explain anything, just said it might be part of MS.
But I don't think she knows what she is talking about. That is why we are going
To get a second opinion next month, the problem with my sisters doctors are, she never
Sees the same doctor (we go to government hospital).

Sally, it actually made sense what you said, in SA its winter now, so I also do
Think that the cold may be the cause, what do you think Tom? What did the foot doctor tell you back
In 2007?

I have a similar issue but it does not seem near as extreme as what your sister is experiencing. And I have had no good suggestions on treatments until recently when I had toe surgery to remove a part of a nail.

Long story short, the podiatrist recommended I use rubbing alcohol on the inside of my toes.

The other issue is that it is a simple untreated fungus. I received medicated lotion. I can use it up to three weeks, twice a day and the chapped roughness and yellow toenails turn back healthy. Then I take a break. I have found that my fungus cream has worked so well that I no longer have to use it nearly as much. And the rubbing alcohol has been a great solution to my between-toe blister.

I don't think it is MS related, it is easy to blame everything on freaky MS and all its weird manifestations.

That makes the most sense of all, Cyn, thanks..

Oh Sadsister

MS is weird, but dxed since 2002 (suspect it started way back in 90s or 80s) and with my PPMS never a toe problem. Can't walk, but never numb, don't really spasm. Nobody is ever the same really, and that's really frustrating. (For me - nobody is ever like me!)

i've never heard of this but i keep learning from everyone's posts.
just try to make sure that the wound doesn't get infected; smells bad, pus, red streaking at skin, etc. that would require an ER visit.

does your sister have a pcp she could see?
i wish i could give you some advice but i don't know.