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Old 07-14-2012, 09:15 AM #2
Marlene Marlene is offline
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Join Date: Apr 2007
Posts: 498
15 yr Member
Marlene Marlene is offline
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Join Date: Apr 2007
Posts: 498
15 yr Member
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Tiffaney,

Since you are in the Virginia area,I would get a second opinion at Johns Hopkins or the NIH in Bethesda. Your meds can cause bone marrow problems as well nutritional insufficiencies.

Make sure your B12 is in the mid to high range, and have them check your iron, folate, copper, vitamin D3, b6 and zinc. All of these are needed to make blood. Make sure they checked these and get the results

My husband was treated at Hopkins in 2002 for Severe Aplastic Anemia. It was the high dose cytoxan clinical trial which has also been used for some forms of MS. He has a local hematologist also.

You need to start tracking your blood tests and BMB's. So get copies of all your test. You want to see first hand what's going on.

You should also look at this site. There's a lot of good info on blood and bone marrow disorders. http://www.marrowforums.org/index.html

AA/MDS Foundation is helpful also.
http://www.aamds.org/

Both of these are a good place to start getting familiar with blood disorders.
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