2 MRIs showing lesions
massive amounts of blood work
standard neurological scoring
several relapses

No, I don't get numbness and tingling all the time. In fact it's fairly rare for me. My primary disabling symptoms are fatigue and leg weakness.

I took copaxone for a year and had three relapses while on it. Useless for me. Had CCSVI treatment which did help many symptoms. Took LDN for about a year before I got pregnant. Will restart the LDN after pregnancy/breastfeeding.

Thanks JacksonsMommy for your response. while the specialist said i Dont have MS...I still wonder what is causing all my tingling in my Legs and Hands...I guess it could be anything...
thanks carol

Carol....

So happy you were able to see a M.S. specialists and that the docs were seriously checking everything! There is nothing worse than feeling like you get "blown off".

So with all the information they have....what do you do now?

I too have intermittent pins and needles....tingling and mostly sensory issues that go awry. I get a lot of what they call "altered sensation" in my skin.
Feels slightly numbish or sometimes a burned feeling. In 2002 the altered sensation in my skin crawled up the right side of my body. Took 7 months to totally go away. Then the inside of my mouth felt a little burned and the skin above my top lip felt numbish.
It was the mouth and lip episode MRI that finally showed lesions going on.

Please , Please let us know what your doctors think about your case!!
Karil (Carol with a K and an I) in Michigan too!!!

Thank you Karilann...
Good question..."where do i go from here" ... I don't really know.!?
the MS specialist said he wanted to see me in 6 month's and do another MRI.

My symptoms are still: Poor Memory...word finding...slowed speech-when i get nervous...balance is off...and of course the darn tingling and muscle twitching sensations in legs / and tingling in hands arms.

I wonder if the memory stuff is from having had a complete hyster 10 month's ago...? maybe the hormones being off..? maybe some symptoms are from my under-active thyroid ... I just Don't know....

So Many people I know in MI have MS...!! makes me wonder...

thanks.. carol

Sorry for the late response, I was away for awhile.

Yes, Dr Rossman is who I see. I like him alot but sometimes don't feel that I'm taken very serious. I am mobile, where as the majority of his patients seem to be more physically handicapped. My last visity did not go that well I thought. I saw his PA who seemed to get very short with me when I told her I wanted to have my MRI at Beaumont instead of MIND. The last one was at MIND and the tech shot some of the gad into my arm causing me to be in awful pain, then pushing me back into the machine, I could hardly breath.
Anyway, Dr Lasik (sp) who is out of Wayne State is a neuro everyone talks about. He is my next pick.
Glad to hear that you are MS free!!! I had 11 O bands on my LP.
Good luck to you!

Sorry it has taken so long for me to reply. I didnt see your post. No, I didnt get copies of my CSF report. Never occured to me to get copies back then or now actually. I should get at least my current one. Thanx!

I have seen all my MRI's. The one neuro went thru them step by step with me so Id understand them. He didnt tell me about the location how it related to my disability now, but thats ok with me, I dont mind. Im feeling and living with the disability I really dont care what lesions do what anymore.

I did have the VEP, and it was within normal limits.

No, I dont currently have ON, but cant say I never have. I wasnt very informed about what MS can do to the body, but I have had symptoms of it. No lasting damage tho. I just had my eyes checked for everything because Im seeing flashing lights. Doc said all is good.

...Thanks you guys.!! ..
I really wonder if those VEP's test even work....
or Any of the "envoked potential's"...

on a side note ..I just had my Vit "D" blood level tested...in the past it has been Low (example: 16, 22, 30, ) this time it was 48 ... I daily take 5,000 mg ..I would think that would have really brought it way Up . .. although 48 is a Good number. I heard a natural path Doc say once he thought it should be around 100 for people with an autoimmune disease. ( i have Hashimoto's) ...

thanks, carol

Congratulations Carbreezy!!!