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Old 09-29-2012, 12:54 AM #1
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Thanx everyone. I took my first dose tonight which was a 4mg, cut in half and no drowsiness at all, but it did help with the spasms. Took another half 6 hours later and my amitriptyline and Im STILL awake!! But... no spasms This is going to be another all nighter I think.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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ANNagain (09-29-2012)
Old 09-30-2012, 06:19 PM #2
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I had been on baclofen & it didn't affect the spasticity at all. When I switched to my present neuro he switched me to zanaflex & I was on the maximum dose...til I ended up in the ER a couple of times with low pulse/BP. I was taken off completely. My spasticity is increasing after 6 weeks of remission...but I don't want to end up ack in the ER. I miss not having spasms...
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Last edited by Debbie D; 09-30-2012 at 06:19 PM. Reason: Fixed typos
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Old 10-01-2012, 12:33 PM #3
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Ok, I took zanaflex for a few days and wound up having hallucinations from it. I was so freaked out I called my dh and almost crawled into the phoone for my protection. He couldnt leave work but he tried to talk me down and I wound up staying awake ALL night waiting for him to come home. It was horrible. Im sad this happend, because the spasms were better controlled with the zanaflex. Im back taking baclofen for now until I can get ahold of my neuro Wednesday. I had split the 4mg tab in half like he told me too, so I wasnt taking the full dose. I wish I could go backwards by about a year, when my MS didnt hurt. I had this my whole adult life and part of my teen years. Im so frustrated with all this bloody pain!!
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 10-01-2012, 04:23 PM #4
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It's one of my worst symptoms...hard to believe docs didn't believe til recently thatMS patients were really experiencing pain
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