Reply
 
Thread Tools Display Modes
Old 02-17-2013, 09:05 PM #1
julie4470 julie4470 is offline
Junior Member
 
Join Date: Feb 2013
Posts: 31
10 yr Member
julie4470 julie4470 is offline
Junior Member
 
Join Date: Feb 2013
Posts: 31
10 yr Member
Default new and excited to meet you

First let me say that I am a limbolander. I have no dx of anything. That would be great news except that I KNOW there is a problem. In fact, I have known for years. Over the years I have mentioned things to my doc here and there. He would explain it away and I would shrug my shoulders and move on. Some of these things have been: vertigo, intense leg pain, anxiety, numbness down right side, incontinence and more. Recently however these things and others have become more intense and more frequent and I can't ignore it anymore. So, went to my GP who listened and did some of the basic neuro tests. He was concerned and sent me for mri and referred me to a neuro. My latest symptoms are right side numbness/tingling. Pain in thighs that feels like icy hot on my legs. Pain and burning on bottoms of feet and face. Balance issues and wide gait. The feeling of water running under my skin down my spine. Episodes of sleep paralysis and on and on! Anyway, had my mri Friday and will get the written report tomorrow. I am afraid it will show something and also afraid it won't. I don't want to have MS or anything else but I also don't want to be dismissed. Can anyone relate?
julie4470 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (02-18-2013), ginnie (02-18-2013), Judy2 (02-18-2013), Kitty (02-18-2013), KittyLady (02-18-2013), NurseNancy (02-18-2013), SallyC (02-17-2013), tkrik (02-19-2013)
Old 02-17-2013, 09:45 PM #2
Blessings2You's Avatar
Blessings2You Blessings2You is offline
Elder
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Blessings2You Blessings2You is offline
Elder
Blessings2You's Avatar
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Default

I sure can relate. Several years ago, when I was seeking a diagnosis, I was crouched in a corner of the kitchen one night sobbing my heart out. I wailed to my husband, "I don't w-w-want MS but there's SOMETHING w-w-wrong with me, and if it isn't MS then I'm c-c-crazy and I don't w-w-want to be c-c-crazy! Waaaaaaah....."

Hang in there. This is a good place--you'll get lots of support. We've been there and we get it!
__________________
*
*
*

**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
Blessings2You is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (02-18-2013), SallyC (02-17-2013)
Old 02-17-2013, 11:17 PM #3
TheSleeper's Avatar
TheSleeper TheSleeper is offline
Member
 
Join Date: Jan 2008
Location: About 35 miles southwest of Cleveland Ohio
Posts: 499
15 yr Member
TheSleeper TheSleeper is offline
Member
TheSleeper's Avatar
 
Join Date: Jan 2008
Location: About 35 miles southwest of Cleveland Ohio
Posts: 499
15 yr Member
Default

Hi, and I can also relate, although I was content with the diagnosis, some of the alternatives seemed a lot worse.
__________________
ditched the witch
.
TheSleeper is offline   Reply With QuoteReply With Quote
Old 02-18-2013, 01:11 AM #4
doydie's Avatar
doydie doydie is offline
Elder
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
doydie doydie is offline
Elder
doydie's Avatar
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
Default

Welcome to the group. Let us know what the MRI shows.
__________________

.
doydie is offline   Reply With QuoteReply With Quote
Old 02-18-2013, 06:19 AM #5
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

Wishing you all the best - no matter what, I hope you get some answers soon. Limboland is not a good place to be.

I remember being devasted (that it was MS), relieved (that it wasn't something much worse), terrified (because I didn't know what the future held, and I was pretty messed up MS-wise at that time) and validated (because finally I didn't feel like a hypochondriac - and it explained so much over such a long time) all at once when I got my diagnosis.

I imagine this would sound similar to many others on here - although we are all affected in different ways, and to different degrees.

Please let us know how you get on, and know that there is lots of support here for you.
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (02-18-2013)
Old 02-18-2013, 09:14 AM #6
marion06095's Avatar
marion06095 marion06095 is offline
Member
 
Join Date: May 2008
Location: North central Connecticut
Posts: 544
15 yr Member
marion06095 marion06095 is offline
Member
marion06095's Avatar
 
Join Date: May 2008
Location: North central Connecticut
Posts: 544
15 yr Member
Default

Julie, welcome to our little corner of the internet. Whether you have MS or not, you'll find loads of information and coping skills here to help you. You'll also find some of the nicest people around. I come here for information, advice, and comfort from people who really understand.

So, WELCOME. I'm glad you found us.
__________________
Life really is a bowl full of cherries once you learn how to spit out the pits.
marion06095 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (02-18-2013)
Old 02-18-2013, 04:54 PM #7
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Julie

Welcome to Neuro Talk. What ever the results ,we will be here for you. Waiting for tests results is often full of fear and tension. You will find some support and friends, no matter what the outcome. Sometimes it does take a long long time for a DX. In the mean time is is no fun waiting around for the DX while you feel so bad. I hope your doctors can find out whats wrong, so that some form of treatment can be started to help you. I am glad you found Neuro Talk, lots of good folks to help you. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (02-18-2013)
Old 02-18-2013, 08:30 PM #8
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

Welcome Julie...hope you got you results today. Keep us updated...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Somewhat new here and excited to be here! Sonny1 New Member Introductions 2 03-18-2011 02:17 PM
I'm so excited!!!!!!! doydie The Stumble Inn 7 01-21-2010 04:24 PM
Wow am I excited! Pamster Bipolar Disorder 11 08-23-2008 07:19 AM
Wow am I excited! Pamster Bipolar Disorder 7 07-25-2008 12:37 AM
I'm so Excited befuddled2 Bipolar Disorder 1 11-20-2006 11:42 PM


All times are GMT -5. The time now is 02:32 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.