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Old 05-16-2007, 08:12 AM #27
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
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Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Oh Cricket -- your little "daughter #3 is adorable!! I love that red hair!! God Bless you for taking her in and giving her a normal, family life with all you have to deal with.

Hi Chris -- You're right on the money about "Ask for Help"--"Who"? We know all about the various resources "out there" for we MSrs, but it's the day-to-day, hour-by-hour struggles that get us! We're trying to hold on to as much independence as possible and really don't want someone around 24/7, but at times things come up where we could use some extra help. Then they're either not available right then or else, as you said, they're ready to move in. Bah Humbug to this whole MS mess!!!

To share a "personal" humiliating experience that happened this morning -- I've been having the bladder problem that gives me no warning for awile, then today it was the "other department". Out of the blue .......difficult clean-up and a huge crying jag. So much of our dignity gets taken away. I was wondering where in Upstate NY you are Chris? If you didn't want to put it here,maybe IM me? I've lived up that way in the past and was just interested.

Yes, in a way I've come to terms with this disease and have experienced the blessing of having others care and help, but the anger and frustration appear, especially when something new comes along. Perhaps these feelings come up more frequently to those of us confined to wheelchairs? I really don't know.

Hope everyone is having as good a day as possible...........Gentle hugs.......
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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