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Old 10-24-2013, 07:23 AM #1
Heather33 Heather33 is offline
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Default Undiagnosed ms and pregnant

Hi everyone,

My name is heather and I'm new here. I've been to my doctors and been waiting 3 months for a neurology appointment.
Basically I started with double vision in June and it got worse until it was permanently there. The optician said some of my eye muscles had stopped working properly.
My arms and legs have been very weak, worse in the mornings gradually improving as the day goes on but never goes away.
Chewing has become a bit difficult since then and sometimes feels like my diaphragm isn't working fully to get a proper deep breath-that comes and goes.
I have very mild tingling in my hands sometimes too.
Stairs are a bit of a nightmare, any more than one flight and my legs have crumpled under me.
The now added complication to this is I'm pregnant-delighted but also worried too.
Is anyone else in the same boat?
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Old 10-24-2013, 10:46 AM #2
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Hi Heather and Welcome to NeuroTalk. Please tell us what your
Neuro says, after all of your testing. If it is MS then Pregnancy
is a good thing, as the protective hormones usually kick in and
soften your MS symptoms, while Pregnant.

I hope you get a DX and med help soon.
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Old 10-24-2013, 02:40 PM #3
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hi heather and welcome to NT,

congrats on your baby to come.
when is your neuro appt?

you might want to consider seeing and opthamologist ( eye physician) instead
of an optometrist. that dr can order tests that the other can't. it might help until you see the neuro and give you information.

start to get copies of test results and ask for copies of any mri's you get. it will help other drs you might see.

we're here to talk to for info and support. let us know how you are.
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Old 10-24-2013, 03:30 PM #4
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Have you explored the possibility of myasthenia gravis? The chewing difficulty and breathing problems are indicative of that, and double vision is a very prominent symptom.

Take care and good luck.
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Old 10-24-2013, 04:17 PM #5
Heather33 Heather33 is offline
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Quote:
Originally Posted by 4-eyes View Post
Have you explored the possibility of myasthenia gravis? The chewing difficulty and breathing problems are indicative of that, and double vision is a very prominent symptom.

Take care and good luck.
Thank you all for your replies! I am waiting for a neuro appointment-my doc put me on an urgent referral that was on Jy 15th I'm still waiting-how long does it normally take?
I have looked at MG-that sounds even more terrifying regarding the pregnancy!
I'm enrolling at a new GP this week as I've moved house so I'll start again and go from the start.
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Old 10-24-2013, 06:24 PM #6
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Quote:
Originally Posted by SallyC View Post
Hi Heather and Welcome to NeuroTalk. Please tell us what your
Neuro says, after all of your testing. If it is MS then Pregnancy
is a good thing, as the protective hormones usually kick in and
soften your MS symptoms, while Pregnant.

I hope you get a DX and med help soon.
Welcome Heather! Have to agree with Sally on this one. Ive had MS 21yrs now, and one of my 3 kids were born while Ive had this and it really does make the symptoms go away until the baby's born. I sure hope you don't have MS, but please keep us updated on your progress with the docs. Praying for you.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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