That is my issue in a nutshell. I have a calf cramp that won't go away and my arms & legs are so heavy. The Amprya has been a miracle for me. The last 3 days I was able to walk around without my cane and I even made cookies with my son without having to take a break or sit on a stool. I was considering quitting work before I started the Amprya because I can't hold my wrists up when I'm typing without it.

Called 3 times now to check and still no prescription.

This morning has been so rough. I could not walk on the treadmill, I had to stop so I didn't fall on my face. Walking my son to class was near impossible and took me twice as long as it had been.

I can barely lift a coffee cup to my mouth again, it takes two hands not to shake. My hips are back to their constant pain and feeling like they are being squeezed in a vice, that had eased considerably with the Amprya.

It's really hard having your symptoms go away for so long you forget about them and when they come back you just want to lay on the floor pounding your fists, kicking and screaming like a child scream NO over and over again.

It's even harder knowing all I have to do is take a pill twice a day to make things better. I keep trying to focus on the fact that there are so many people for whom this drug does nothing and if I'm just patient I will receive relief again soon. But for many they do not have that.

Even if it takes until next week I will manage this. It is definitely helping me to know what my new base line is after my attack at Thanksgiving. I had started the Amprya before that attack had finished and did not know what further permanent damage it had done.

I've told myself to calm down...to not get mad, which I usually don't, but I'm fuming right now. I've been waiting for a week now to hear back from my doc, who was supposed to call my neuro regarding me getting the IVIG for this stupid Parvo infection that is wrecking my joints. I called on Tuesday and reminded his nurse, but still didn't hear back, so I just called again.

Apparently my doc isn't in today but yesterday he left a note for his nurse to set up a call between him and the neuro for tomorrow. He has basically sat on it for a week without doing diddly, while I've been sitting at home...I'd say tapping my fingers on the table, but that is an impossibility with the condition that they are in. It is hurting a lot to type this but, but, but...I just need to vent.

My parting comment to the nurse was that if my doc doesn't talk to the neuro tomorrow, or if in fact he doesn't intend to, to at least take the initiative and put in the order for the IVIG himself; or to prepare my records because I'll be getting another doc.
That got them moving (I over heard them talking while I was on the phone). Probably because I am also a medical practitioner in this town and there is the potential for negative publicity among fellow practitioners not shining a kind light in his direction.

Sheesh. Its times like this that I wonder why some docs are so casual about things with their patients; especially when they aren't that way with their own family members. I know that they aren't because when one of their own needs treatment at my office, they want them to get in ASAP...and even ask for our practitioners to stay late or to reschedule someone, so 'theirs' can get in.

How's that for a rant?
Passing on the cheese...I'm going for the real wine.

Sheesh..so much for professional courtesy. Hope you get the attention you deserve!

My husband is doctor and that was an extra nice thing at the time of my heart surgery. And the fact that a neighbor friend is a nurse on the cardiac floor!.

IVIG is often done with a home health care nurse, that is good so that you are not exposed to the yukkies at the hospital.

Best
Missj

Wow...I was really on a rant yesterday. Back to my usual self now, thank goodness. I dislike getting into "myself" like that.

I honestly don't believe that I deserve any more attention or consideration than anyone else...but it just seems like that base level of consideration is not universally applied at times.

Thanks for the listening ear .

With love, Erika

I feel like we are kindred spirits in that sentiment. I do not feel I am any more deserving than another but I do feel like there is a lack of basic consideration. If we as a species could simply apply that to everyone, even those we do not consider worthy of it, our planet/societies would be in a much better place.

Erika, considering the amount of pain and discomfort you've been dealing with, I would have thought your doc would have put a stat on the order...shame on him.

You had every right to be upset. I am non assertive until I let it boil to overflowing-then I call and rant. I should just call several times per day until they get so sick of hearing from me they do as I ask

That's why this thread is here, dear...hope the wine was helpful...

On the note of consideration/courtesy. My husband called me while I was on the phone with the specialty pharmacy, finally getting my prescription shipped to me. My co-worker, the one I can hear through my door with the radio going, puts my husband on hold after he told her he was trying to find my neurologist office.

My husband is dropping off a form for me and could not remember where the office was. My co-worker's husband goes to the same neurologist for MS. They are the only neurologist in our entire county. My husband could no longer hold, hung up and called back 10 mins later after driving around where he thought it was. He finally asked her to knock on my door and let me know that he needed to know where the neurologist's office was. So, she did and I had just ended my call with the pharmacy. When I was done telling him where it was located I asked her why she didn't tell him where the neurology office was located? She said I guess I just didn't think I should. What!?

(((((((Erika)))))))

(((((((KerOpi)))))))