So after trying to chase down the doc he didn't call. Boo to him- so my anxious self took it upon myself to get the radiology report - so I think I may be joining you all but I will wait for the doc to actually call me-

What it did say in the impression is this- possible small focal cord lesion at the c2-3 Level. Although not specific it could represent an area of demyelination. Also consider MRI of the brain.


Will keep you all posted- thanks for the welcomes I appreciate them a all!

Welcome TJ!

MRI's of the spine are difficult to read. I would not be able to read it. Did they only do an MRI of the spine or did they do an MRI of your brain as well? Also, was contrast used? I'm sorry to hear about the possibility of MS for you but please know that we are here for you to help you through the dx process as well as support. Let us know how things are going.

Hello
They only did a cervical spine MRI . They did do w/wo contrast. It does say unfortunently there is movement so they are unable to see any other lesions. Opps! It felt like a panic attack in box! I'm assuming they will order another spine another with a brain one?

Unfortunately you really have to lean on doctors sometimes. It's a pain but don't give up!

So the doc finally called! Longest wait!

Not knowing i have the report and I'm Nancy drew-

He said there is a lesion on my spinal cord so he can't say if its ms or not- yet since its only one lesion. So I need another MRI of my brain and we can figure it out from there. What could cause just one lesion and all my symptoms c'mon doc! Lol I feel frustrated but I understand. I told him though when I bend my neck my left side feels like a shock which is new- then he proceeds to say oh well this is active then. I would like to get an MRI ASAP but with the holiday it most likely won't be until next week.

I know in my gut I have ms- I just need the conformation I guess you know?

TJ- Oh, we know. We hear you loud and clear.:P Many of us waited 10 or 20 years for a diagnosis before there were MRI's.

Again, sorry this is happening but it does seem to be happening, doesn't it?

How are you feeling?

ANN

Oh my 10-20 years - I'd gone insane!!! Kudos to you guys then, makes my month seem not bad at all.

I still have the same problems which brought me to the nuero. Left sided numbness/tingling. I'm dealing with it but it stinks. Touching paper and clothes feels weird on my hand sensory wise-which I don't think my husband fully understands that when comming to laundry. I also think I have l'hermittes(?), I noticed that Sunday. When I look chin to chest I get a sensation done my left side which is my effected side- like a little zing. Positive note I'm a righty so that's good I guess.

Like I said I know in my gut I have it- I'm pretty good with them. I have a 5 and 6 year old. Do you tell your children? In a child friendly way, both my children have anxiety so I think explaining is better than not? I saw s'mylen on ms.org and that looked awesome.


As I was typing the doc called brain MRI this Friday night- funny when they want things done ASAP they can

Hi tj6306,

Not all of us went that long before being diagnosed I was diagnosed 28 years ago and it took 3 months for a diagnosis (PCP to Neuro to testing to diagnosis).

Lhermittes is not unique to MS, there are other causes. However, when related to MS Lhermittes is caused by lesion(s) on the cervical spinal cord. As noted you do have one lesion in that location.

Lhermittes: bending head down and experiencing abnormal sensations (vibrations/buzzing, electrical shocks). These sensations last only seconds but can be repeated each time the head is bend down.

I have had Lhermittes for 28 years and experience vibrations/buzzing from the waist down when looking down.

It only took a week for me to get my diagnosis and I was totally gobsmacked. I thought I just needed new glasses. You could have knocked me over with a feather. I'm not sure what's worse.

I was really fast between neuro appointment, to MRI to diagnosis - my kids were 5 and 8 at the time. I think you have to explain it to them (at least to some degree) because kids are incredibly perceptive and if you don't, they will start getting scared and imagine all sorts of terrible things - like that they are going to lose you.

I wouldn't drop it on them until I had a firm diagnosis, but it wouldn't hurt to say that your body isn't working quite the way you are expecting it to, and your doctor wants some pictures of your brain to work out why.

As you have already found, there are some great publications around from the MS society - and you will also get really valuable insights on here from those who have walked this path before.

Good luck with your tests, knowing what you are dealing with will make your fight (and your acceptance) much easier. But you know what else? You mentioned that your kids have anxiety - that must really be playing on your mind, but you will be amazed how resilient kids really are when the chips are down.

Hugs, and I hope all goes well and you get some answers