Hi tj6306,

Not all of us went that long before being diagnosed I was diagnosed 28 years ago and it took 3 months for a diagnosis (PCP to Neuro to testing to diagnosis).

Lhermittes is not unique to MS, there are other causes. However, when related to MS Lhermittes is caused by lesion(s) on the cervical spinal cord. As noted you do have one lesion in that location.

Lhermittes: bending head down and experiencing abnormal sensations (vibrations/buzzing, electrical shocks). These sensations last only seconds but can be repeated each time the head is bend down.

I have had Lhermittes for 28 years and experience vibrations/buzzing from the waist down when looking down.