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Old 05-16-2014, 02:20 AM #21
happycowsfromwyo happycowsfromwyo is offline
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Join Date: May 2014
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happycowsfromwyo happycowsfromwyo is offline
Junior Member
 
Join Date: May 2014
Posts: 11
10 yr Member
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Quote:
Originally Posted by Mariel View Post
It took me over 30 years from my first obvious symptoms to get a dx of MS. I was moving around and doing things (sometimes badly) for all that time, so I guess they thought it was "all in my head". Finally I got double vision and after some delay I got an MRI which showed myelin lesions, plus I had other tests like Visual Response, which was done easily in the office. I have no idea if I had lesions earlier. Later I got another dx, Porphyria, and about 50 % of doctors over the years thought I had Porph primarily, 50% thought I had MS primarily, and I think I have some sort of combo. This shows you how "grey" the area of thought may be about the "grey matter" in our heads.
Please try the books on tape or DVD if you are too fidgety to read.
As for the new anti-depressant, I will look it up, but I already know that too much B6 can be a challenge for the nervous system, often for "normal" people as well as people with neuro illnesses. I think more than 15 mg a day is too much unless you are taking it in the form called p5p, which is pre-metabolized. I am not sure 15 mg is too much for everyone, I'm just throwing that out as a sort of rule of thumb I've learned from various doctors and reading material, and harsh experience, over the years.
Everyone around me, except my boyfriend, thinks it's "all in my head" and that I'm crying wolf. My dad told me to start taking more vitamins, eat fruit, and get on a normal sleeping schedule. That it's probably just because of that that this is happening. I can understand how doing that can help a lot, but he also doesn't want me seeing any more doctors. Maybe the b6 is what triggered this...I don't know. I guess I can find out. I'll see what audio-books I can find at the library here.
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