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Old 05-20-2014, 12:22 PM #1
Elle114 Elle114 is offline
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Default Thank you!

Thank you to all that replied. I go back & forth with "I have it" and "I don't have it". The MRI is this Friday but it's at 4pm, so guessing I won't know anything until next week. I've felt pretty good this week. Today, my eyelid was really droopy and I had a headache behind it. I held it close with my finger (which wasn't hard to do) for an hour and with some headache meds. it seems better.

The whole reason I started going to the doctor was because of migraines. I don't see much talk about that on the symptoms list.

I just keep telling myself whatever the issue is, we'll deal with it. Which sounds all good and fine except I'll admit I sometimes get really scared at the thought of it being MS.

I lost my mom to lung cancer last year which was devastating, and with this recent health issue, I keep thinking of a quote I read somewhere that said, "What you do TODAY is Important, because you are EXCHANGING a Day of your Life for it".
(sure makes you forget about doing the laundry all day

Thank you all again.
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Old 05-21-2014, 02:14 PM #2
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I know it's easier said than done, but try not to worry about it too much. Just take it one step at a time. Are you keeping a journal of your symptoms? If not, it might be a good idea to do so as it will help in the diagnosing process.

I have only had an occular migraine twice in my life. They kind of freak me out but I know what they are and they can be pretty entertaining. I get the kind with no headache just lots of jagged lines (black & white and colors). They each lasted about 20 minutes or so and resolved.

Hang in there, Elle! Let us know how your MRI goes and the results.
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Old 05-22-2014, 08:29 AM #3
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Well it's over....the MRI at least. I had it last night at 9:30pm, never imagined they would be doing them that late. But it was the way to hopefully get the results back before the holiday weekend. And man let me say those are pretty un-nerving!! I had one years ago for my knee which was no big deal but this was test of my mediation skills. I felt like it was some torture device.... buried alive with crazy loud non-stop noises for over an hour. I had really wished I had opted for some relaxing meds. I won't make that mistake again.

So now just wait and see. I really feel like will be clear....maybe denial... but like to think it is positive thinking.

Last night I played the powerball lottery too and joked if I could "win" one thing a clear MRI or the money which would people pick?

I sure appreciate the support I have received from so many kind people here, it really does help! Thank you

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Originally Posted by tkrik View Post
I know it's easier said than done, but try not to worry about it too much. Just take it one step at a time. Are you keeping a journal of your symptoms? If not, it might be a good idea to do so as it will help in the diagnosing process.

I have only had an occular migraine twice in my life. They kind of freak me out but I know what they are and they can be pretty entertaining. I get the kind with no headache just lots of jagged lines (black & white and colors). They each lasted about 20 minutes or so and resolved.

Hang in there, Elle! Let us know how your MRI goes and the results.
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Old 05-22-2014, 12:59 PM #4
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I'm glad things went well for you and hopefully you will have the results before the end of tomorrow. Please keep us posted on your results and how you are doing.

For some people MRIs are a walk in the park. For me, I go sedated. A full MRI takes a while. My last one was a brain, cervical spine, and thoracic spine all at one time. Thank goodness for Ativan!
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Old 05-23-2014, 02:06 PM #5
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Confused Results, even more confused

Well results are in, small spot right front. Dr said that white matter unusual for my age recommending neuro specialist and exam of spinal fluid. Dr. mention report mentions several times regarding that since it didn't involve contract can't be determined or something. Got the news at 5pm and I really couldn't think clearly to ask questions. I think I was a little shocked, cause even during the times I had trouble seeing or walking, I kept telling myself there are a million other reasons for this or it was all in my mind. Even as she was saying the results, I was rationalizing it as a mistake or something.

I really don't know what to think right now. I don't know how what to hope for...what is better for the "spot" to be? a tumor? MS? how about a fly on the scan, lol.

Dr. said something about narrowing at the base of head/spine or something, I don't really remember. She said could be the cause of tingling in my arm. Not sure if she was saying like I need to see a chiropractor or does "narrowing" mean something self? I don't know! I don't know anything about any of this. world seems like it is spinning around me right now.


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Originally Posted by tkrik View Post
I'm glad things went well for you and hopefully you will have the results before the end of tomorrow. Please keep us posted on your results and how you are doing.

For some people MRIs are a walk in the park. For me, I go sedated. A full MRI takes a while. My last one was a brain, cervical spine, and thoracic spine all at one time. Thank goodness for Ativan!
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Old 05-23-2014, 03:24 PM #6
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Have you seen a neurologist? That should give you more answers than people on a message board can. I'd ask the doctor for a printed report if possible so you could show that to a neuro.
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Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz
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Old 06-06-2014, 12:17 PM #7
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Default One small ...

Quote:
Originally Posted by Elle114 View Post
Well results are in, small spot right front. Dr said that white matter unusual for my age recommending neuro specialist and exam of spinal fluid.
Elle, sorry about the spot, but one spot can be many things besides MS. You need to get a copy of the film for yourself (that's a normal request) and get a written copy of your doc's report on the film. Keep them in your records at home.

Follow his recommendation as to further testing. The MRI is only a first step.

Although I do have MS, the numerous white spots throughout my brain have had NO effect on me in 20 years. No memory loss. No eye problems. No speech or swallowing problems.

The lesions that affect me have all been on my C-spine and T-spine.

We'll be thinking of you.

MsBluIs
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Old 06-06-2014, 01:05 PM #8
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The drooping eye with your presentation of migraine makes me think of possible atypical migraine. With only one lesion it may be inconclusive for MS. Remember the newscaster a few years back who had one-sided facial droop and slurring her words on the air? No stroke, no MS, but atypical migraine.

A good neurologists should be looking at different possibilities.
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

Last edited by jenng; 06-06-2014 at 01:07 PM. Reason: spelling
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