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Old 06-29-2014, 08:46 PM #1
Mariel Mariel is offline
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Default Odd eye event--new to me!

I had an eye problem many years ago and it was what got me an MRI and other diagnostic tools. I had a blind spot and double vision then.

This is very different, what I had last night. It could have been from too long use of computer and glancing sideways at the computer because I was too lazy to move the chair. Suddenly everything in my field of vision was like a "fun house" or "hall of mirrors" where I had at least 4 images seen at the same time, but that is putting it too simply. It was like the images were stirred up. I could not really see anything, except as pieces of a fragment.
Color and intensity were not affected.
This lasted about 20 minues and the aftereffects were a somewhat sore eye and right cheekbone, and some eye dimness for the rest of the day, but it went away by the next afternoon.
I went to the ER but after they gave me some usual tests for heart they wanted to do a CAT scan. By that time my eye was improving and I knew that if I had a scan every time I had a neuro problem, it would be more than Medicare would pay for. Anyway, I'm not absolutely sure they will pay after I refused the CAT scan, and didn't sign the paper saying I refused treatment, because I had had several tests done, including blood pressure, heart and heart rate, and all the usual grip tests for stroke. I will try to see if the pcp wants to give me an MRI. I don't like CAT scans because their radiation is 600 times that of a chest x ray, but the unfriendly doctor said I was not thinking right because at my age I didn't have a lot of life to preserve anyway. My reason for not having a scan was not to live longer, but to live better what time I do have, but no use discussing that with her.

Anyway, I will look carefully at the screen from now on, cover my eye during some of TV watching, etc. Rest it more.
I already have a yearly appt. with the eye doc for Wednesday, but she has always said it's something neuro in my brain, not in the eye....maybe something different this time.
It was "extreme" or I would not have called 911.
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Old 06-29-2014, 09:32 PM #2
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So sorry that you had to go through this ordeal Mariel. I have no idea
what that was, but scarey indeed. The hosp Dr was an unfeeling idiot.
What an awful thing to say to a patient.

Let us know what your PCP/Neuro say and praying that this was just a
fluky thing and won't happen again.

Take care.
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Last edited by SallyC; 06-29-2014 at 10:25 PM.
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Old 06-29-2014, 11:33 PM #3
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Have you ever had occular migraines before? From what you have described it sounds like it may have been that. I've had them before. They pretty wild. I don't get a headache with them, just a little soreness in the eyes. They last anywhere from 5 minutes to 30 minutes for me.

I would definitely call the hospital and put in a complaint about the ER doctor. There is no excuse for her comment (or verbal vomit as I like to call it). You may outlive her for all she knows. Sheesh!

I hope that you find an answer to what happened and the solution is an easy one.
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Old 07-02-2014, 07:06 PM #4
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Hey, Tkrik (are you Natalie?) you were right! The eye doctor said she had had a migraine similar to this, only one in her life (and this one was my first), and that this is the latest viewpoint about what a migraine is, that it is a neuro storm or seizure.
She said to go ahead with the ultra-sound today, which I did, and no clot was discovered. My eyes have been normal since the occasion and I am going to be more careful about studying fine-print records as I had done that day.
I would not report the doctor. Having a rare disease, porphyria, I know that I will receive aberrant behavior and opinion from doctors who do not understand the situation. It is part of the territory. I talked to a couple of people about it, though, and they said this doctor was considered a misery by several people who have gone to the ER. Usually I get very good doctors when I've gone there in the past. It's rolling the old dice.
My eyes have been OK since then!
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Old 07-03-2014, 06:43 PM #5
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While not quite the same, had a strange thing happen to me today, was in the middle of crocheting when the eyes just went a bit crazy... Like they were REM mode, but I was awake. A bit dizzying, tried blinking a few times, seemed to go away but I was hit with it again they just started jumping rapidly back and forth. Put down the crochet hook, rested for a bit listening to Beethoven and they calmed back down.

Thankfully I was sitting down for the whole thing. But weirded me out a bit. I guess the neuro should be happy that she gets to hear about a new symptom, though what it's a symptom of ... Who knows
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Old 07-03-2014, 06:56 PM #6
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Quote:
Originally Posted by Starznight View Post
While not quite the same, had a strange thing happen to me today, was in the middle of crocheting when the eyes just went a bit crazy... Like they were REM mode, but I was awake. A bit dizzying, tried blinking a few times, seemed to go away but I was hit with it again they just started jumping rapidly back and forth. Put down the crochet hook, rested for a bit listening to Beethoven and they calmed back down.

Thankfully I was sitting down for the whole thing. But weirded me out a bit. I guess the neuro should be happy that she gets to hear about a new symptom, though what it's a symptom of ... Who knows

That sounds like nystagmus.
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Old 07-10-2014, 04:07 PM #7
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Okay, no more classical music crocheting sessions... Just happened again
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Old 07-10-2014, 10:34 PM #8
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Don't blame the crocheting. It's probably coincidental that it happens when you crochet.
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Old 07-10-2014, 11:02 PM #9
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Must be the classical music..
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Old 07-10-2014, 11:25 PM #10
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Could be coincidence, but has happened twice now, and only when those two are combined... I can listen to Bach, Beethoven, Chopin, (not Saint Saens too scary always gives me the heebee jeebees) Handel, Pachabel (who I adore!) and I'm fine... I can crochet or crochet while listening to Marilyn Manson or heck even Frank Sinatra nps... Crochet plus classical music = wiggy eyes. So far seems to be the case, though only happened twice now.

Might try it a few more times and see. I do tend to 'wander' with classical, brain starts focusing on the music instruments, which before losing the majority of function in my left hand I played five different instruments. Piano, guitar, psaltery, violin and clarinet, so I start breathing with the clarinets, fingers tapping a piano that isn't there, hand bowing a nonexistent violin or psaltery or strumming an air guitar... So it could be linked to my hands being busy doing something unrelated to what the brain thinks I should be doing.

Yet with lyrical songs, I can just sing along and I don't really 'focus' on the instruments.
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