advertisement
Reply
 
Thread Tools Display Modes
Old 09-14-2014, 10:28 PM #1
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default Now I have an invisible scarf around my neck!

Fun times, with moving and the stress of all we need to do to our new (old) house, plus returning full time to work after being on medical leave & part time duties for 2 years, I hate to admit to myself that I'm not Wonder Woman, I am ill and have a disease that likes to poke it's ugly head in when things get tough.

Within the last 2 weeks, my neck (predominantly on the right side, but it does go all the way around) feels like I have a scarf wrapped around it. Not painful, very discomforting. If I put my hands on my neck, the feeling goes away.

It's very much like when I had girdle-band sensation around my torso 6 years ago or more, only this time it's around the neck.

I don't want to seek out medication to treat this - would rather avoid steroids. It's purely sensory so I'm going to just deal with it. If my vision becomes affected again though, that's when I'll be headed back to the ER and neuro.

Oh MS, you're such a clown!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (09-23-2014), BBS1951 (09-19-2014), Natalie8 (09-15-2014), SallyC (09-15-2014)

advertisement
Old 09-21-2014, 07:21 PM #2
Sheep13 Sheep13 is offline
Junior Member
 
Join Date: Sep 2014
Location: Australia
Posts: 6
8 yr Member
Sheep13 Sheep13 is offline
Junior Member
 
Join Date: Sep 2014
Location: Australia
Posts: 6
8 yr Member
Default That sucks!

Hi,

I'm so sorry that you have that. It sounds awful. I have an invisible rubber band around my foot but that's nothing. I can't imagine how annoying it would be around my neck :/

I have constant squeezing around my waist too. I'm really looking forward to that going. I hope your neck band goes away soon! Have you tried visualising it "falling off on the floor" I find those sort of things help me when my waist is tightening up. Sing Let it Go and picture it falling off

When all else fails "Pills are good....Pills are gooood" Quote from Dumb and Dumber
Sheep13 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (09-23-2014), dmplaura (09-25-2014), SallyC (09-21-2014)
Old 09-23-2014, 07:38 PM #3
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
Default

Laura and Sheep-

Last time we were at my Mom's house I was sure there was a thread around my L great toe. Nothing there. DH2B offered to pretend to cut it off. His theory was that since he apologizes for things he is told he has done in my dreams, that maybe "cutting" the thread would work. It did not. Lasted over a week.

ANN
ANNagain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (09-25-2014), SallyC (09-23-2014)
Old 09-25-2014, 09:18 AM #4
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

I have an invisible scarf around my left upper arm! Not quite rubber band, but definitive all the same.

Not a nice feeling - but better than chest/neck ones I have had previously.
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (09-25-2014), SallyC (09-25-2014)
Old 09-25-2014, 07:26 PM #5
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

thanks all. I like the idea of visualizing it falling off. I'll have to try that.

I still have it now. It did go away on a couple days, but the moment I get into a situation of conflict, stress, overworking myself.. the invisible scarf comes back!

Yes, around the waist was my first run-in with this type of sensation, though now that others have mentioned it, I've felt similar sensations around my fingers and toes over the years.

I guess the fact that this is around the neck and uncomfortable made me sit up and take notice. Ugh!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (09-25-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The invisible becoming more visible… Vrae Reflex Sympathetic Dystrophy (RSD and CRPS) 27 04-03-2014 01:27 AM
Invisible Man GladysD Creative Corner 0 04-17-2013 01:58 PM
invisible lesions on MRI Bort Multiple Sclerosis 10 11-30-2012 09:34 AM
Cooling scarf on HSN Dejibo Multiple Sclerosis 4 06-20-2012 05:31 PM


All times are GMT -5. The time now is 04:14 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.