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10-09-2008, 07:42 PM
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#602 | |||
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Magnate
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Infusion # 19 today!
Everything went well, no problems, no concerns. It was so smooth I was out of there in 2.5 hours! The nurse had everything waiting for me when I got there. The pharmacist came in right after the Q&A. I talked to the nurse about the pinpoint itchies and my quest to find out what is causing them. We did the rotation of the bag several times during the infusion. I didn't do the benadry or the tylenol since they didn't do anything last time. NO ITCHIES TODAY! We are going to try it again next month, just to make sure that is what it was (the drug and the sodium becoming separated during the hour infusion) but it all went well today. No relapses since I started, nothing but gravy since May 25, 2007! 
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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10-09-2008, 07:50 PM
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#603 | |||
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Elder
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Quote:
Maybe you're allergic to the Benadryl?  Anyway, I'm glad it went well this time! 
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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10-13-2008, 12:18 PM
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#605 | ||
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Senior Member
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Lauren,
Thanks again for the help. MS Active Source is taking a very close look at my insurance policy and what I have paid thus far for both Tysabri and infusions. It appears that I have been overcharged thousands and already met my deductable (months ago, regardless of what my insurance company has said). Your help is appreciated greatly -Vic |
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10-15-2008, 10:08 AM
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#606 | ||
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Senior Member
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I learned a new phrase relative to insurance billing: "balance billing". There are a bunch of sites on the web that describe it, and it seems that it has played a significant roll in the billing that I have received. Today there will be a conference call between the folks on my side (Biogen, Anthem Blue Cross, and my attorney) to nail down this problem and determine how many thousands we have paid because of this issue.
We shall see... -Vic |
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10-15-2008, 03:50 PM
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#607 | |||
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Magnate
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Good Luck and please let us know how it goes, Vic!
Maybe you can educate us so others in the same situation can learn about it and be pro-active if and when it happens to them!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | Victor H (10-15-2008) |
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10-15-2008, 04:32 PM
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#608 | ||
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Senior Member
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Quote:
Balance Billing: http://www.businessweek.com/magazine...8040915634.htm Pay close attention to what you are billed, and NEVER believe those in the Billing Department of any institution/company. They will always say that you are wrong and that your credit will be damaged if you do not pay the bill. -Vic |
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10-16-2008, 10:41 AM
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#609 | |||
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In Remembrance
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 Needless to say, I did not pay them and after a phone call from me, was never billed again. 
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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10-17-2008, 10:12 AM
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#610 | ||
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Senior Member
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Biogen has helped to resolve a ton of billing issues with information from my insurance provider. Lauren (MSLadyInca
) has helped alot.Next week I am getting an emergency dose (free) from Biogen. It is being shipped to a new infusion center wherein my out of pocket expenses will only be $25, as opposed to what the other infusion center was charging (over 20 times that amount). So, if everything goes as planned, then I will be starting my Tysabri data collection once again and will not be joining the Rebif wagon. -Vic |
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