[Jodylee]

On Monday I was having what I thought could be "ms hug" type pain. I called my neuro's office and "Shari" answered. I explained what was going on and she told me she would call me right back after she spoke with the doctor. She called me back and told me to go to the er that my neuro is affiliated with. ARGH! I did not want to go, did not want to call my dh to take me. I hate the er and doctor's in general LOL.

I said to myself "well, I better go because the doc will be po'ed at me if I don't". I called my husband and he said "you're going". So I went. They doped me up, did bloodwork, a urinalysis and sent me home.

Background on my neuro: MS specialist with years of experience. Recommended by the MS society. They have a desk set up in his waiting room. He's the doctor that dx me in May last year with active lesions on my brain mri and with the space and time criteria.

I already had an appointment scheduled with my neuro on Tuesday.

(I am so angry/confused I just went and smoked a cig in the middle of this LOL)

I go in on Tuesday, doped up on Lorcet from the er. The pain is getting a lot better at this point. My doc says to me when he comes in "So how have you been since your last visit?" HUH!!!! I told him I spent the day at the er the day before because that is what he requested! He says "I knew nothing about this, apparently "Shari" thinks she's a doctor now or one of the other neuro's in this office sent you".

He was angry because the hospital didn't call him or do any x-rays because I was having pain that was increasing when I took a deep breath.

As the visit is progressing (my husband was with me), he does all the usual neuro exam things like the finger to nose test etc. I remind him that I'm starting Ty on the 13th. He looks a bit surprised??!! Then he says "How long has it been since I sent you for your last T-spine mri?". I say "NEVER"! He writes a scrip for the mri and wants it done before I start the Ty. At this point I'm getting just a tad irritated with him !

He has all of my medical history. I also have spinal stenosis and some compressed discs in the c-spine area dx by an ortho years ago, which my neuro knows about. My pain could've been from this, maybe??!!! I was in a bad car accident in 1997. Wheel-chair bad. He knows I've been seeing a therapist for years for anxiety issues.

At this point I'm ready to get the he!! out of there. I've not had these types of problems with him in the past so I'm really confused by all of the bs.

When I get to the sign-out desk to schedule my appointment for next month I turn around and see that my husband has disappeared?!! The girls at the desk tell me he made a u-turn with the neuro.

I wait in the waiting room for my husband to reappear. When we get to the car I asked him what the he!! that was about!

He tells me that my doctor slipped him a note and wanted to see him alone!!!!


He told my dh that he thinks that I'm exaggerating my symptoms because he's never seen a patient who is able to walk (with or without aid) not be able to pass the finger to nose exam. He says to my husband that I do have MS but I'm EXAGGERATING. He tells my husband that he thinks I should see a therapist and to call the MS society for a referral. My dh told him that he's known me for 23 years and that I don't exaggerate symptoms. He told him that if anything I down-play them so I don't have to go the doctor LOL. For god's sake, I don't even have a pcp or gyne because I truly despise going to the doctor. (Don't tell me I should; I know that already)

I am furious because of this violation of trust. I think my neuro should've talked to me about this issue, not my husband. What if my husband was an idiot or abusive!!!

I really don't want to change doctors. I've got enough carp going on right now. I'm starting Ty next week at the infusion center in his office! I'm going to try and give him the benefit of the doubt. I will go in for my next appointment and "discuss" these issues with him .

What do you all think??? Even if I was a loon who exaggerates symptoms (believe me I even started to doubt myself after this, until my dh told me to wise up), he shouldn't have gone to my husband.