It depends on the lab, which tests are run. On my paperwork, it says a lot of, *Test run, but not ordered* not charged or refunded. Something to that effect. Also says CFS savd? - Yes. I believe the other thing saved was blood taken at the same time (it was the only other thing taken).

(Also, on my papers, it does not say *Tube one, tube two* like yours does. And he took 4 tubes of CSF. Were they all exactly the same? Maybe, or maybe they dumped them all in one vial and tested it that way. I wonder if that matters?)

How long it was saved or where is anybody's guess. A little sluething and you might find some lab stuill has your samples. You MAY be able to get the CSF and blood sent to another lab for testing.

That would rock, no?

Just cuz you the other side of nowhere don't mean your stuff can't be sent anywhere on God's green Earth, see what I mean? It's a thought.

And then I read SBrown's post - wow, good call!

Where did you get that LP done, GJ? I'd call and tell them I want a copy of the results from them. (The one you have now is from your doc, isn't it? I bet the other one is more complete)

Curiouser and curiouser.....



Can I get you a nice hot cup of chamomille? Send a cabana boy over to give you a neck rub or something? This stress has gotta be killing you.

LOL!

I acually got the results from the Hospital that preformed the test so I have everything, including all the stuff for my ER visit to get a blood patch. My BP was thru the roof!! LOL!!!

I went shopping to get my DD her birthday gifts. Can't believe she is turning 19 on the 22nd!! How time has flown! I used this as an excuse to stop worrying about the LP....but can't wait to hear from my Optho/Neuro. He's the only one with brains in this city I swear!

DH talked to a friend who's wife was having eye issues, had gone to many doc's here and got no answers. So she went to my doctor, and after an hour of testing, he finally told her it "Was in her head'....so I know he has no problem saying such...when he really believes it and the proof is there....He has told me on two occassions now that in his view, it IS MS.

I remember years ago listening outside the door as he broke that news to a man and his wife....and they were stunned and in denial....but he knows what he's talking about. I'm convinced.

My only other option is to go 'outside' (Seattle....) and I can't do that. Thats interesting about the samples being kept...I'll ask about that if there is a question regarding the results and lack of testing....

Thank you all so much, as usual!!!
Jeannie

Oh Jeannie, you poor thing! Looks like you're back on that Limbo Roundabout with a vengeance!

I'm inclined to agree with the others when they said your results obviously aren't all through yet, and if you were being tested or MS....then those results are not on the list you gave! I'd have been expecting to see results for:

Serum Alb -
CFS Albumin -
CFS IGG -
CFS Index -
IGG stnthesis Rate -
IGG -
Ogliclona Bands
Myelin Basic Protien

OG Bands, myelin based and other proteins (albumins) have been used for a long time now when diagnosing MS.

I'm a bit bewildered as to why these wouldn't have been tested.

Me too, I guess can't believe the Dr would do an LP and than NOT run the right test on the CSF to check for MS. I even feel bad that I have complained about my Dr not running more test on the CSF but I did get the MS profile.

Koala,
Thanks for the list it's a big help! I'm speechless at this point. Look forword to getting to the bottom of it soon. Once I got the 'fight' out I felt alot better. You'd think I was the drama queen but every step of the way its been the health care system. Every single test I've done has had some kind of failure. I'd list them but this note would be a book! I think of the bill's I've seen my insurance company pay (and me) and it must be approaching $20,000 USD.


I'll be sure to share when I get some answers from the idiots in Anchorage, Alaska with hope the doctor I love will have my answers, as well as my new PCP!!

I called the hosptial today. They failed to send the correct report, and are now sending it to me. I should have it in the mail the next few days. I'm going to assume that it will turn up 'negitive' at this point. But I'll let you know. Thanks for all your help last week.

I can't wait to see what all is on this LP report.

I just saw this thread, and although I'm tickled that it was the hospital's screw-up and not a testing or lab mistake, I still feel all loud and growly that you've had to go through, or that anyone would have to go through, worrying about possibly having to have it re-done.

Somedays it seems as though if you aren't sick already, the medical system will make you so.

Glad you were able to get some answers.
Now just hope they send it to the right address...

I'm pleased you didn't just give up GJ. It did appear a bit odd that the tests you cited seemed to be an incomplete list.

I daresay you'd have heard if there were any abnormailities, but then again if you didn't get the lot.....did your doctor?