Hi,

I've done lots of reading online...but am ready, now after 8 weeks, to go into a bookstore and find some books about MS and living with MS, etc.

I guess this is kinda like a mini-poll.....Just wondering what books have you found helpful?

Thanks!

~Keri

Multiple Sclerosis: A Guide for the Newly Diagnosed, by Nancy J. Holland

Multiple Sclerosis: The Questions You Have - The Answers You Need, by Rosalind Kalb M.D.

Managing the Symptoms of Multiple Sclerosis, 4th Edition, by Randall T. Schapiro, M.D.

and for my kids:

Coping When a Parent Has Multiple Sclerosis, by Barbara Cristall

I've read the guide for the newly diagnosed. It's good.

Believe it or not, my favorite is "MS for Dummies". Has a lot of good info parceled into parts. My hubby thought I was weird for getting it, but it's helpful.

I found an older copy of Multiple Sclerosis The Questions You have The Answers You Need by Rosalind C. Kalb. I liked it enough to buy the newer copy and use it like my "bible"

Lorna Moorehead's Coffee in the Cereal is about her first year with MS and it is really a funny book (much better than the 2 comedians who wrote books!)

When the Road Turns: Inspirational Stories by and about People with MS by Margot Russell and really loving it - features men and women. I found it very inspirational - lets you know that life took a turn not a stop....I highly recommend it.

The Multiple Sclerosis Diet by Dr Roy Laver Swank.

When I get down, it's one of the most hopeful books I can read. I look at his very long term study and see that his patients did great and did not become disabled over a period of 30+ years. That's the kind of stuff I need to see.

I also really like George Jelenik's book "Taking Control of MS" - it's got personal stuff (he's a doc with MS) as well as diet info.

I have to agree with this one. Another MS friend sent it to me as a gift, and it's educational, as well as a "fun" look at MS and how the author coped in her first year after diagnosis. Even my DH learnt from... and enjoyed this one!

Curing MS by Howard Weiner is very good but has a lot of medical and technical terms, and details of studies. I read thru it once and am re-reading with the medical dictionary at hand. My favorite is Women Living With MS. I have loaned it out and can't remember the author right now.

Have you seen her second book? It is about the first 5 years and I thought it was especially helpful for the guys in our lives!

I like this thread, there are books here I haven't seen....thanks.

I also like the MS for Dummies book. It is really a great guide. Arranged into diffrent sections there is alot to learn in it.

Joyce

So, I got bored one night when I couldn't sleep and ended up ordering more than 15 MS-related books from Amazon.

Of course, I often can't read b/c of double vision - but I bought an eye patch (only use it at home) and then I do better. This has been the first time in nearly 3 months that I've been able to sit down and read a book!!

I wanted to add some recommendations of my own now:

Women Living with Multiple Sclerosis: Conversations on Living, Laughing and Coping

I REALLY like this book!
(this is written by a woman with MS - who "met" several women from an online support board - and they ended up starting their own email group - all the women are in different phases of life and the disease - and they discuss their issues, etc. Proceeds go to the NMSS, btw. I'm really "enjoying" this book..and highly recommend it - I've cried and I've laughed.)

Facing the Cognitive Challenges of Multiple Sclerosis

I read this one, too, and liked it - it was the story of a lawyer who has MS - and the challenges of the cognitive problems and how he had dealt with it and continues to deal with it. It was a little informative...but mostly just another "true story" which I really like anyhow...now I just read true stories about people with MS.

I also ordered the MS Diet Book - and Amazon ended up sending me 5 copies of it!! Do you think that's a sign? I have not started any kind of diet plan or healthy eating - and I've gained a TON of weight. I can not seem to get my act together....and it's becoming a problem. Maybe I should scatter the books around my house so I see them everywhere? Amazon hasn't responded to my email letting them know they sent me 5 of them.

Multiple Sclerosis: A Guide for Families

I really like what I've read in this, too - tho, I've just skimmed it so far. It looks really good.

I also got the following (all of them are MS related and published or revised within last 2 years or so):


Remembering the Bone House: An Erotics of Place and Space (this was recommended by MS World - the next two books are by the same author)

Carnal acts: Essays

Waist-High in the World

Progressive Multiple Sclerosis: New Hope, New Challenges

Living Beyond Multiple Sclerosis: A Women's Guide
(this is like a continuation of the first book I mentioned above)
The MS Workbook: Living Fully With Multiple Sclerosis

My Story: A Photographic Essay on Life with Multiple Sclerosis (this is pretty neat, and with a foreward by Richard Pryor's wife)

The MS Recovery Diet

Exercises for Multiple Sclerosis: A Safe and Effective Program to Fight Fatigue, Build Strength, and Improve Balance

MS and Your Feelings: Handling the Ups and Downs of Multiple Sclerosis

Multiple Sclerosis for Dummies

Curing MS

Managing the Symptoms of Multiple Sclerosis

The First Year: Multiple Sclerosis: An Essential Guide for the Newly Diagnosed

Multiple Sclerosis and Having a Baby: Everything You Need to Know about... (this book was written many years ago, tho)