Reply
 
Thread Tools Display Modes
Old 03-15-2008, 12:36 PM #1
Chris's Avatar
Chris Chris is offline
Member
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
Chris Chris is offline
Member
Chris's Avatar
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
Default

To all of you who are suffering through the "ifs and maybes" of this bloody disease, my goes out to you. I will keep you in my thoughts and prayers.
__________________
"I didn't know he was dead; I thought he was British"
Woody Allen

.
Chris is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (03-15-2008), sassy (04-09-2008)
Old 03-15-2008, 01:31 PM #2
Victorya Victorya is offline
Member
 
Join Date: Jan 2008
Location: Los Gatos, CA
Posts: 187
15 yr Member
Victorya Victorya is offline
Member
 
Join Date: Jan 2008
Location: Los Gatos, CA
Posts: 187
15 yr Member
Default

I know what you're all feeling. And my heart goes out to you.

But don't panic until you need to.

A few years back, my son (he was 23-24 years old at the time) called me and said he went to the doctor because his hand was numb. So numb in fact, he was having problems using his hand, picking things up, typing. The doctor was sending him to a neurologist. How long had it been numb?? Uhm, about two months, he said. TWO MONTHS??!!!

I got off the phone, and turned to my husband. I started to cry. Jon's hand and forearm have been numb for two months. He's being referred to a neuro! HE HAS MS!!!

IT'S MY FAULT!!! I gave my baby MS!!

Jump ahead a couple of months. It turned out he had a lipoma (fatty tumor) that was growing on a nerve in his forearm (they are common in our family) which was causing his arm and hand to go go numb.

In a 40 minute outpatient surgery, the lipoma was removed and after sufficient healing time he was as good as new. The numbness was gone and he had complete use of his hand.

Now, I don't mean to belittle your son's symptoms or to tell you that you don't have any right to worry...you are MOMs, of course you have every right to worry...but don't worry about MS until you know it's MS.

There are many things it COULD be. Many so much better than MS...and some much worse. But because we HAVE MS, and we dont really know about all of the other things...the first things we think of IS MS.

Warm wishes to every one out there with a child (no matter how old) having any kind of health problems.
__________________
~Victorya~
------------------------------------------
Spring 2002/present - Double Vision
Feb./Dec. 2004 - Optic Neuritis
Dec. 17,2004 - Diagnosed RRMS
Feb. 9, 2005 - First Rebif injection
Mar. 7, 2006 - "Copaxonator"
------------------------------------------
Victorya is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (03-16-2008), SandyC (03-15-2008)
Old 03-16-2008, 09:25 AM #3
D_HOLLAND D_HOLLAND is offline
Member
 
Join Date: Jan 2008
Location: Houston
Posts: 158
15 yr Member
D_HOLLAND D_HOLLAND is offline
Member
 
Join Date: Jan 2008
Location: Houston
Posts: 158
15 yr Member
Default

(((hugs))) and prayers, i feel your pain

Please keep us updated
__________________
Son with MS
D_HOLLAND is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (03-16-2008), sassy (04-09-2008)
Old 03-16-2008, 10:44 AM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by Victorya View Post
IT'S MY FAULT!!! I gave my baby MS!!

That is my biggest concern. If he does have something neurological I'm going to beat myself up over it.

I wouldn't even drink a carbonated drink while I was pregnant - no caffeine, no sugar. I did everything I could to remain healthy and give my babies every chance at being born healthy - and they both were. Big babies, too. 9 and 10.5 pounds.

Logically, I know this could happen even if I didn't have MS. But I'm a Mom - logical thinking is out the window!!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (03-16-2008), sassy (04-09-2008)
Old 03-16-2008, 11:36 AM #5
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

As a mom, yes we do worry about the possibility. One thing I have to tell Jim when he starts to worry if one of our boys acquires ms is this: HE IS NOT AT FAULT. It's not like we went out and picked up ms because we did too many drugs or drank too much or whatever. It's not like we could have did any genetic testing at the time to tell us their chances if one of us got sick. It will never be anyone's fault if our children get sick. I would never blame Jim if one of our boys got ms. It's a mystery.

Let's all try to remember that and pray for the best in our children. Beating ourselves up does no good in the end. We don't even know 100% sure if ms is genetic or if it's environmental or what the dang thing is. Cancer runs in my family and I would say half of them are convinced we will die from cancer. No one knows but the big guy in the sky right? Right?
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (03-18-2008), sassy (04-09-2008)
Old 04-05-2008, 11:58 AM #6
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

First off - Sassy, I hope your son is doing better. Did he ever go to the doctor to get his symptoms checked?

My son had his appointment on 4/4 - he went and they took blood and told him they'd call him on Monday or Tuesday with the results of that test. His insurance doesn't require a referral so they said that he should go ahead and make an appointment with the Neurologist.

He's going to use the one I go to. I have to make an appointment for myself, too, so I'm going to try and see if we can be seen on the same day (back to back) so I can be there, too.

I'm trying not to worry about it - because it is what it is. Worrying isn't going to help. I've said a lot of prayers, though.

I'll keep you posted! Never a dull moment in my world..........
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ALS mentioned on Ghost Whisper (the series) JAH39 ALS 0 01-05-2007 09:08 PM
Since Johnny Cash was mentioned-- glenntaj Peripheral Neuropathy 16 12-29-2006 05:22 PM


All times are GMT -5. The time now is 02:22 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.