advertisement
Reply
 
Thread Tools Display Modes
Old 04-09-2008, 10:03 AM #21
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by Debbie D View Post
Confused here...

So does that mean that PN is not a sx of MS?

I thought that the nerves can be screwed up enough to cause that type of pain...just as they can cause muscle spasms, fasciculations, etc.

Please clarify for me...my brain is seeing question marks dancing in the air
Quote:
Originally Posted by lady_express_44 View Post
I think the confusion (not his . . . but in just differentiating sometimes) is because our peripheral nerves are often ultimately affected with MS. That's as a result to the damage in the CNS though . . . different kettle of fish.

Cherie

Yes, PwMS often suffer from peripheral nerve damage too, Debbie . . . but it is caused by a process that is going on from within our central nervous system (MS lesions).

PN can be a stand alone condition, or as a result of various other conditions:

http://www.ninds.nih.gov/disorders/p...neuropathy.htm

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (04-09-2008), Kitt (04-09-2008), sugarboo (04-09-2008), tovaxin_lab_rat (04-09-2008)

advertisement
Old 04-09-2008, 10:11 AM #22
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by Debbie D View Post
Confused here...

So does that mean that PN is not a sx of MS?

I thought that the nerves can be screwed up enough to cause that type of pain...just as they can cause muscle spasms, fasciculations, etc.

Please clarify for me...my brain is seeing question marks dancing in the air
Neuropathy is...but Peripheral Neuropathy is something completely different and is NOT MS. That's my point. You bet you can have neuropathy. I have it...and I think probably most people with MS have some sort of neuropathy. But...

if you got to the PN forum and read about PN, you will get a much clearer definition about PN. It's a disorder that affects the all the nerves except those of the brain and the spinal cord. "periphery" those on the outside...it's interesting reading.

From WebMD

Quote:
What Is Peripheral Neuropathy?

The name of the condition tells you a bit about what it is:
Peripheral: Beyond (in this case, beyond the brain and the spinal cord.)
Neuro-: Related to the nerves
-pathy: Disease
Put these concepts together and this is what peripheral neuropathy means: It refers to the conditions that result when nerves that connect to the brain and spinal cord from the rest of the body are damaged or diseased.
The article goes on the describe the different types of PN, for carpal tunnel to Guillan Barre, Charcot-Marie-Tooth, to symptoms associated with HIV, Herpes Simplex, and Diabetes.

Quote:
One example of an acquired peripheral neuropathy is trigeminal neuralgia (also known as tic douloureux), in which damage to the trigeminal nerve (the large nerve of the head and face) causes episodic attacks of excruciating, lightning-like pain on one side of the face.
Please don't think I am discounting what she may or may not have. What I question is HIS comments that PN is a form of MS. It is not.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (04-09-2008), sugarboo (04-09-2008)
Old 04-09-2008, 10:35 AM #23
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

The brain and spinal cord (CNS) are the "orchestrators", and our PN nerves are part of the "band". In PwMS, our "orchestrator" is messed up (lesions), so the band just does not play the song properly.

Sometimes though, just part of the band (PN) doesn't cooperate, even with a good orchestrator (CNS).

Here's a good link on the different nervous system:

http://webschoolsolutions.com/patts/systems/nervous.htm

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (04-09-2008), MSacorn (04-09-2008), tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 10:44 AM #24
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Cheryl, have a good day and don't let others bother you. Your momma is #1 and that is what should be focused on. Family can be such a pain that you want to wring their neck. Save that for when Mom isn't looking! lol

Honestly, at this point let him chatter. It isn't worth the stress or aggravation. Some people just think they know it all and you can't change that. You've been through enough. Hugs to you and your family.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 12:24 PM #25
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

I want to go to lunch with you! LOL. Sandy is right, maybe try to keep the focus on Mom where it belongs right now. Should he try to change the subject, redirect the conversation to Mom, family, and lighthearted things.

It would be a great time to take a trip down memory lane. It is fun to get our parents take on things now that we are older.

Good luck today!
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 01:41 PM #26
DM's Avatar
DM DM is offline
Legendary
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default

Good for you, FG!!! Don't let anyone shift the focus from what's BEST for your Mom to anything else. You just keep your level head and don't forget to let us know how Mom is doing.

Sending hugs to you, my friend!
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 02:00 PM #27
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Yes PN is not a form of MS, although MS may cause PN.

I know someone with both PN, MS and Diabetis and they are all
separate illnesses and yet intermingle, somehow.

Maybe her Doc is thinking possible MS, but DXed her with PN??

Take care with your mommy, Cheryl.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 02:37 PM #28
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

Cheryl,

It sounds like he has his terms all mixed up. He probably caught little scraps of information that the Mayo-trained neuro said and translated it in his own way. The neuro probably used MS and PN in the same conversation...

I'm glad you set him straight. I've been thinking about you, hoping you're managing ok while visiting your dear Mom. Take care of yourself and tune the bothersome relatives out if you can.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 05:18 PM #29
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Flygirlie!

Get the paper and whack him with it. Whack her too while you're at it!

I am sorry to hear that you had to come out of the closet. Did you come all the way out or just stick out your neck?

Having to deal with a parent's illness is ALWAYS a stressful thing, from beginning to end, and you don't need this carp on top of what you are dealing with.

I'm holding you in my prayers, along with Mom. Please try not to stress out too much ( I know that will be hard!) and do the job you planned to do while you are there.

I'm here if you need to talk, yell, blow off steam, etc. I am off until Sun. night, so call if you want!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Old 04-09-2008, 05:33 PM #30
SurvivingMSwithHOPE's Avatar
SurvivingMSwithHOPE SurvivingMSwithHOPE is offline
Member
 
Join Date: Oct 2007
Location: Knoxville, Tennessee
Posts: 119
15 yr Member
SurvivingMSwithHOPE SurvivingMSwithHOPE is offline
Member
SurvivingMSwithHOPE's Avatar
 
Join Date: Oct 2007
Location: Knoxville, Tennessee
Posts: 119
15 yr Member
Default

Quote:
Originally Posted by Av8rgirl View Post
LOL! Want to have lunch with me today????

Well, darn, I missed lunch! Let us know how it went!! Hopefully not too stressful. Prayers for you and your Mom!
__________________
Marcia
.



.
SurvivingMSwithHOPE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (04-09-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is RSD a form of Fibromyalgia? Coffeebean Reflex Sympathetic Dystrophy (RSD and CRPS) 3 03-25-2008 06:58 PM
Take Away form the PDF 50th Stitcher Parkinson's Disease 25 10-22-2007 10:17 PM
A Form Of Dwarfism!.......................... Justice General Health Conditions & Rare Disorders 12 05-26-2007 08:00 AM
Imetego? Is it s form of shingles? Pamster Lyme Disease, Shingles and Other Microbial Conditions 2 05-25-2007 03:55 PM
B-12 in the form of Methycobalamine for PD lou_lou Parkinson's Disease 4 12-15-2006 12:06 PM


All times are GMT -5. The time now is 03:10 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.