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#21 | |||
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Senior Member
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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#22 | |||
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Elder Member
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Have been on and off steroids for my lungs and this MS, each time I say no more, then i get so far down, it helps, so what do u do. but even the doc said no more oral next does will be iv which I have no idea what to expect other than when I was in one time getting these massive doses of steroids injected but i was so far down hat time I don't recall much of it,
I get so tired of the weight gain from both types of roids, I try and try carrots salads low sugar carbs ect... I get so hungry on these things arggghhhhh so I am going to look into a few of the suggestions on here as an alternative,, cause u know dam well in ten yrs we will hear, oh and test show steroids cause this or cause that..... I believe the I will over come the flair sx or signs myself in my own pace, is where i am leaning to wards, have been do this lately doing my best to cut down on the amt of pills i consume for my ms and doc agrees with me i am not a big pill person, its not an answer , its a band aid, therein lies my problem, I need to be a bit realistic too some of this stuff there is only a band aid for help so .......... what to do what to do this will be my last time too, I had a melt down this time due to the large amount of roids and the fact i was having a wee bit of trouble mentally with this relapse flair exacerbation thingy, whatever you want to call it. this time it attacked my other side of my body so that was freaking me ,the steroids where pumping me ,and I did actually grab the keys and take a long drive other night, so we all agreed here, No one likes me on roids when i get past my zenith, and worse of all I don't like me when I am all pumped up on them, now i hear others say they sleep on these things, all the time, yes i did too at first cause I was so MS wiped out, but as i progress the roids , I hate em cause they work for me and i hate em cause of what they do to me, probably could of saved a lot of typing and typed that last line right away you all have happy Sunday peace
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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#23 | |||
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Member
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I have read 2 books already, everything on the NMSS page (printed out most of it for my family as well). And alternative pages and a host of other pages..LOL I am a research fanatic, and when I get something to research I don't stop till I have found the answer to every single questions I want. I researched Gastric bypass for 4 years - 2 for my mom, then 2 more for me. I researched my doc for about 6 months and I had the best!!! LOL Your history really puts things in perspective for me when it comes to this disease. Do they think you had this a while before you were diagnosed? Do you use a DMD? And if you don't mind (I know us women never tell our age) how old were you when you were diagnosed? Thanks for the info =)
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Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#24 | |||
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Member
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You have a great Sunday also!
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Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#25 | |||
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Member
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You are the perfect person for whom the band would work!!! Congrats on your loss, you are not far behind me!! I have been at it 18 months!! I have been heavy all my life and dieted my way up to my heaviest ![]() Just like finding out about the MS. Had I not had GBP, I would have gained 10 pounds in the last week from comforting myself. This can not happen (I actually shed 2 pounds ![]() Good luck with the last 30 pounds. You can do it... Maybe we ought to work together to reach our goals =)
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Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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"Thanks for this!" says: | Friend2U (04-15-2008) |
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#26 | |||
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Member
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I was thinking that also, but was afraid to say it
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__________________
Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#27 | |||
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Member
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Quote:
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__________________
Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#28 | |||
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Member
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Why have you decided against DMDs. I am at that cross road now. I don't want to take them, but DH wants me to. I see the possible benefits, but see the HUGE risks...
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Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#29 | |||
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Member
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I did go on a very LOW does of steroid therapy for my urticaria in November. No side effects, I just hated being on them!
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Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#30 | |||
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Elder Member
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thats the trouble with many things in life the double edge sword thingy, the steroids for the lungs do help, these for the ms I have doubted them helping, although they did help take the headache (13 days)away i was having with this flair, and nothing else was helping, short of an injection,
its also seems to be this way with other meds and some treatments too your danged if you do or if you dont, glad to see a number of us feel same way and its not a oh i am only one type of situation. that helps at least peace
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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