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Old 04-13-2008, 01:58 AM #21
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Originally Posted by beautytransforming View Post
I am down 145 pounds, have 5 to my goal, 20 to the ultimate, OMG, never imagined goal =) I am planning plastics for next year. I would do this every year if I had to! Best thing I ever did for myself!! How are you doing? I know the lap band is generally slower and harder, and takes the most will-power. I never had any.
That is a great accomplishment for you...Congratulations! I have been at it for almost 2 years and have shed 120. To be where I would like to be I would need another 30. But if I never lose another pound, I feel very happy with my size now. I had never been heavy until after I had my 4th child. Got real depressed about some things in my personal life and .... well.... tried to eat my way into comfort for years. I was never a yo-yo dieter.... just kept eating.... didn't care about anything. Well, true confessions!!! I'd better shut-up.
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Old 04-13-2008, 08:00 AM #22
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Have been on and off steroids for my lungs and this MS, each time I say no more, then i get so far down, it helps, so what do u do. but even the doc said no more oral next does will be iv which I have no idea what to expect other than when I was in one time getting these massive doses of steroids injected but i was so far down hat time I don't recall much of it,

I get so tired of the weight gain from both types of roids, I try and try carrots salads low sugar carbs ect...

I get so hungry on these things arggghhhhh

so I am going to look into a few of the suggestions on here as an alternative,, cause u know dam well in ten yrs we will hear, oh and test show steroids cause this or cause that..... I believe the I will over come the flair sx or signs myself in my own pace, is where i am leaning to wards, have been do this lately

doing my best to cut down on the amt of pills i consume for my ms and doc agrees with me i am not a big pill person, its not an answer , its a band aid, therein lies my problem, I need to be a bit realistic too some of this stuff there is only a band aid for help so .......... what to do what to do

this will be my last time too, I had a melt down this time due to the large amount of roids and the fact i was having a wee bit of trouble mentally with this relapse flair exacerbation thingy, whatever you want to call it. this time it attacked my other side of my body so that was freaking me ,the steroids where pumping me ,and I did actually grab the keys and take a long drive other night, so we all agreed here, No one likes me on roids when i get past my zenith, and worse of all I don't like me when I am all pumped up on them, now i hear others say they sleep on these things, all the time, yes i did too at first cause I was so MS wiped out, but as i progress the roids , I hate em cause they work for me and i hate em cause of what they do to me,

probably could of saved a lot of typing and typed that last line right away

you all have happy Sunday


peace
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Old 04-13-2008, 09:31 AM #23
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Originally Posted by Av8rgirl View Post
I have used IVSM to treat the 21+ exacerbations I've had since my dx in early 2001. I have RRMS. I do not use oral pred, it makes me very sick.


Remember, knowledge is power.
I am assuming IVSM = IV steroid meds? I'll have to look for the abbreviations.

I have read 2 books already, everything on the NMSS page (printed out most of it for my family as well). And alternative pages and a host of other pages..LOL I am a research fanatic, and when I get something to research I don't stop till I have found the answer to every single questions I want. I researched Gastric bypass for 4 years - 2 for my mom, then 2 more for me. I researched my doc for about 6 months and I had the best!!! LOL

Your history really puts things in perspective for me when it comes to this disease. Do they think you had this a while before you were diagnosed? Do you use a DMD? And if you don't mind (I know us women never tell our age) how old were you when you were diagnosed?

Thanks for the info =)
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Old 04-13-2008, 09:39 AM #24
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Originally Posted by weegot5kiz View Post
I hate em cause they work for me and i hate em cause of what they do to me,


peace
Frank thanks for sharing your frustration. I hope it helped a bit to get it out. One thing I do know is if you take them for your lungs for COPD or something of the sort, they do benifit. I know, I hate to say that!!! I sound so hypocritical (saying they help in one instance but don't want to take them myself).

You have a great Sunday also!
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Old 04-13-2008, 09:43 AM #25
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That is a great accomplishment for you...Congratulations! I have been at it for almost 2 years and have shed 120. To be where I would like to be I would need another 30. But if I never lose another pound, I feel very happy with my size now. I had never been heavy until after I had my 4th child. Got real depressed about some things in my personal life and .... well.... tried to eat my way into comfort for years. I was never a yo-yo dieter.... just kept eating.... didn't care about anything. Well, true confessions!!! I'd better shut-up.

You are the perfect person for whom the band would work!!! Congrats on your loss, you are not far behind me!! I have been at it 18 months!! I have been heavy all my life and dieted my way up to my heaviest I was a binge eater, and, well, just LOVED food. I have a much healthier outlook on food now - well, most of the time.

Just like finding out about the MS. Had I not had GBP, I would have gained 10 pounds in the last week from comforting myself. This can not happen (I actually shed 2 pounds ) now, and instead I turned to research!

Good luck with the last 30 pounds. You can do it... Maybe we ought to work together to reach our goals =)
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Old 04-13-2008, 09:44 AM #26
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21+ !!!!! I will never whine again!!
I was thinking that also, but was afraid to say it
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Old 04-13-2008, 09:46 AM #27
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I don't take steroids for an exacerbation. Took them once, and my tongue swelled up and blocked my airway...so no more for me. I just wait out exacerbations. Even if I could take them, I'd probably forego them at this point in my life as I'm starting to deal with some osteopenia according to my bone scans, and steroids can lead to osteoporosis.
Yes they are bad for the bones!!! (Singing bad to the bone now... great. I will break out with that song in the middle of church )
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Old 04-13-2008, 09:49 AM #28
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I've never used steroids in the 17+ yrs I've had this disease. I've never used ANY meds actually (like, DMD's, Baclofen, Neurontin, etc.) , except Naproxen and a/d's (on occasion), and LDN.


Cherie
Why have you decided against DMDs. I am at that cross road now. I don't want to take them, but DH wants me to. I see the possible benefits, but see the HUGE risks...
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Old 04-13-2008, 09:54 AM #29
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Also, just as we're not "supposed" to take NSAIDS (like advil - ibuprofen, etc.) - I take them and have no problems. I'm told that the reasoning for not taking them is because of possibility of developing an ulcer and/or ruining the lining of our new pouches.

Good luck - and I hope you feel better from this flare...

~Keri
I take advil as well, now and then. Steroids are hard on your blind stomach because they work on the proton pumps as well, and you get decreased acids in your blind stomach. That is one of the reasons to be careful with NSAIDS, because of your blind stomach and the increased possibility of ulcers, since it would be so difficult to diagnose. BUT, with that said, I never had problems with them prior to surgery, and my chances of having trouble with them now is just as low.

I did go on a very LOW does of steroid therapy for my urticaria in November. No side effects, I just hated being on them!
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Old 04-13-2008, 09:57 AM #30
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thats the trouble with many things in life the double edge sword thingy, the steroids for the lungs do help, these for the ms I have doubted them helping, although they did help take the headache (13 days)away i was having with this flair, and nothing else was helping, short of an injection,

its also seems to be this way with other meds and some treatments too your danged if you do or if you dont,

glad to see a number of us feel same way and its not a oh i am only one type of situation. that helps at least


peace
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