First, let me send a hug your way. This disease sucks!

I have lost my career that I spent many thousands of dollars being educated for. I have lost most of my eyesight. I used to be able to read day in and day out, now I use books on tape. I lost my ability to drive myself anywhere. I really hate that! I used to love being in the car. it was my freedom, my escape, and now, its just a way to get to the MD or pharmacy. I lost a large chunk of finances by being forced to retire. I lost friends who cannot adjust to my new needs. I lost stamia and the ability to stay out till one am, or walk up the mountain to have a picnic. I no longer run marathons.

I gained the true knowledge of just how much my husband loves me. He LOVES to listen to those books on tape with me. I used to read alone, now we enjoy stories together. When I am able we take a leisurely stroll down our own block. I have gained a chauffer. No more struggling for a parking spot or worry about a hot day taking my breath before I can get into the store. My chauffer drops me off at the door. I cant climb mountains anymore, but I can watch videos of mountains with my family. I dont go out to eat at fancy places anymore, but we cook together as a family. I have learned that my bed doesnt have to be made perfectly in order for the day to begin. Vacuuming can wait till I am able to do it. Laughing and being with my family is now my focus, not taking care of others.

I hope you feel better and are able to stop and smell some of those roses while you are in the slow lane.