Reply
 
Thread Tools Display Modes
Old 05-27-2008, 05:20 PM #41
mom23angels's Avatar
mom23angels mom23angels is offline
Member
 
Join Date: Mar 2008
Location: Madison, GA
Posts: 282
15 yr Member
mom23angels mom23angels is offline
Member
mom23angels's Avatar
 
Join Date: Mar 2008
Location: Madison, GA
Posts: 282
15 yr Member
Default

Noidy,
You have new friends here and we know what you're going through! I used to say I wanted to be back at my pre-kids weight, well.. I guess I found a reason how to do that just not the way I planned. More and more I'm learning to adapt since this is all still new to me. I guess the hardest part is I'm definitely a type A personality and letting go of some of my control is very hard to do.

Monique
mom23angels is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Ivy2 (05-27-2008), SallyC (05-27-2008)
Old 05-27-2008, 05:38 PM #42
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Flygirl, my friend,

I am not going to list the things lost here on my end. You already know what they are.

It's funny that you should write this post at this time. I was looking at the pics of the MW GTG and the thing that first struck me about myself in those pictures was how incredibly TIRED I look (nevermind how much weight I have gained!). Add that realization in to how long it has taken me to recuperate from the whole thing and it's like getting a slap in the face all over again as to what this stupid disease takes from us all.

I don't have any good advice except to rest more and do what you can, when you can, and to let you know that I'm here and hugging you and mourning with you for all the losses.

I think maybe I'm not alone in this, yanno? Coming here and letting it all out is more like this!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
FinLady (05-28-2008), Girlie Girl (05-28-2008), Ivy2 (05-27-2008), Jappy (05-27-2008), Kitty (05-27-2008), Koala77 (05-28-2008), SallyC (05-27-2008), SandyC (05-27-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 06:31 PM #43
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

sandy makes a good point trying to slow down or pace oneself, which is easier said than done, but it is very important, but i also must agree with what your thread is about. I use to be able to walk many miles a day, and I cant anymore, and yes it does get the best of me and upset me
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Ivy2 (05-27-2008), SallyC (05-27-2008), SandyC (05-27-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 06:51 PM #44
Jappy's Avatar
Jappy Jappy is offline
Senior Member
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Jappy Jappy is offline
Senior Member
Jappy's Avatar
 
Join Date: Oct 2007
Location: Kentucky
Posts: 1,477
15 yr Member
Default

Cheryl all I can say is that it has changed my life completely.

You know all the problems that goes with it.

With my dh passing 2 yrs. ago sx have been worse. Maybe it is
depression that is getting to me. I don't know.

The past 3 months the fatigue has been bad. I just can't find the
energy to do so many things. Wanted to get things in my flower garden
done before the heat came, but the weather has been crazy, now today
summer has hit. Went outside for about 30 min. had to come back in.

Stay in the house in Winter****Cold
Stay in the house in Summer****Hot

No happy meeting

You rest and realize all the good you have been doing for MS
Split your priorities up. Tomorrow is another day.

I should take my own advice

Jappy
Jappy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Ivy2 (05-27-2008), SallyC (05-27-2008), SandyC (05-27-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 07:06 PM #45
Ivy2's Avatar
Ivy2 Ivy2 is offline
Member
 
Join Date: Sep 2006
Location: here on earth
Posts: 190
15 yr Member
Ivy2 Ivy2 is offline
Member
Ivy2's Avatar
 
Join Date: Sep 2006
Location: here on earth
Posts: 190
15 yr Member
Default

a bf of 17 yrs. lol
a job of 36 yrs.
use of a lot of my legs and hands - most important of all...

but not my sense of humor and my love of life.

Last edited by Ivy2; 05-27-2008 at 07:30 PM.
Ivy2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (05-28-2008), PolarExpress (05-27-2008), SallyC (05-27-2008), SandyC (05-27-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 08:31 PM #46
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Quote:
Originally Posted by Ivy2 View Post
a bf of 17 yrs. lol
a job of 36 yrs.
use of a lot of my legs and hands - most important of all...

but not my sense of humor and my love of life.
I don't know if this was meant to be funny or not but if you read it the way I just did you'd all be ROTFL.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Ivy2 (05-27-2008), SallyC (05-27-2008)
Old 05-27-2008, 08:42 PM #47
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

(((((((((((Cheryl))))))))))) Bless your Pea picking Heart..

That's the horror of this %$#@$ disease....It chooses to strike us during the prime of our lives and dwindles us down untill we have little of our old selves left.

Am I a little bitter...Nahhhh.. I am thankful, like Cherie says. that it happened to me slowly over the years and I was able to lead a fairly normal life until it hit me again in my 50s....then the bottom started fallin out and I sort of lost all the big stuff, like walking, running, driving, bowling, partying, strength and youth, over the last 10 years.

You are still one of my heroes, Cheryl..I just know things will get better for you soon..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Ivy2 (05-27-2008), Jappy (05-28-2008), SandyC (05-28-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 08:57 PM #48
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Dear Koala,

Quote:
Originally Posted by Koala77 View Post
The list goes on and I mourn for the loss of my career, but the thing that hurts me most is my grandbaby.

I have a beautiful grandson, and I'm too frightened to pick him up in case I drop him. The thing I hate the most about this rotten disease is not being able to be a normal, cuddly grandma, like most grandmas are.
This is one of my biggest fears. I am expecting my first grandson in August. I fear I am not going to get to be the Grandma that I want to be. But I will do my best. A lot of what you said hits home!

~Friend
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Koala77 (05-28-2008), SandyC (05-28-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 09:04 PM #49
PolarExpress's Avatar
PolarExpress PolarExpress is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
PolarExpress PolarExpress is offline
Grand Magnate
PolarExpress's Avatar
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
Default

OK Cheryl..Don't let this go to your head or anything (), but I've always admired you. You've always seemed so strong, even if you didn't feel like it, and have helped others stay afloat thru their questions and fears of this disease thru your words..We've all lost something to the MonSter, but we've all gained something, too..
(((HUGS)))
...Kris
__________________

.
PolarExpress is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Ivy2 (05-27-2008), Jappy (05-28-2008), SallyC (05-27-2008), SandyC (05-28-2008), tovaxin_lab_rat (05-27-2008)
Old 05-27-2008, 09:15 PM #50
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Cheryl,

Bless you heart... sometimes it just gets to be too much. It's not fair...anyway you look at it. Darn it!

You are in my thoughts and prayers.

~Friend
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (05-28-2008), tovaxin_lab_rat (05-27-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I got lost ! thav1 The Stumble Inn 5 01-24-2008 10:50 PM
Hello, I'm a bit lost... allyandnoah New Member Introductions 2 09-17-2007 05:54 PM
Lost someone befuddled2 Bipolar Disorder 15 04-07-2007 06:13 PM
I need some help, has anyone ever lost??? KellieS Reflex Sympathetic Dystrophy (RSD and CRPS) 16 03-16-2007 04:17 PM
OMG!!!!!!!!! I lost it ALL!!!!!!!!!!!!!!!!!!!!!!!! LIZARD Weight Loss & Healthy Living 12 01-20-2007 09:00 PM


All times are GMT -5. The time now is 12:34 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.