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05-31-2008, 02:52 PM
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#81 | |||
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Magnate
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Quote:
 Need someone to help you set up Wine-o-rama?   
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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05-31-2008, 02:56 PM
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#82 | |||
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Wise Elder
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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05-31-2008, 03:00 PM
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#83 | |||
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Member
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Cheryl --
Just found this thread. I know. MS is fraught with losses. So sorry about some of yours -- the flying solo, the job stuff. My MS losses include: 1. I've just recently lost my 3rd job in the 6 years since MS hit. [a.]Apr. 2002 -- Ran out of FMLA time [b.]Dec. 2003 -- Decided to close a licensed day care home, after my parents needed to find other care for their children following an absence during an MS flare. Didn't want to start over, when I knew it would likely have to happen again. [c.]Human Resources, instead of sending FMLA forms, sent a letter telling me that I would not be returning to para-educator position in school. This was the 3rd time in my 4 years of working there that I'd had a flare that required FMLA time. 2. When I'm in a flare, another loss for me that is I become manic. The way I describe it is that I become someone that I am not. It is difficult for me, when I recover to know that I can be so much out of control of my thoughts and behavior. Most flares, for me, require hospitalization at a mental health facility. They usually occur once approx. every 10-12 months. 3. Financial losses. Had to refinance our home in 2003, due to excessive medical expenses. Has affected what jobs I am able to take, what income I am able to earn, etc. 4. Employablitity. Wondering if it is time to apply for disability. In a new job, I expect to have a flare that requires more time off than I am eligible for, prior to qualifying for FMLA again. It looks like I would likely bounce from one job to the next for the next 20 years if I would look for a new job. Have an appt with a disibility attorney next week. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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05-31-2008, 03:03 PM
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#84 | |||
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Magnate
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Quote:
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | AfterMyNap (05-31-2008) |
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05-31-2008, 03:19 PM
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#85 | |||
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Elder
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I know how hard you have worked to stay employed! I was so disappointed to read that you'd recently had another flare with a long hospital stay.  I wonder if you get disability and you're able to slow down if maybe those bad flares will ease up on you. I certainly hope so, and I'm so glad to hear that you're seeing an attorney for applying for SSDI. I hope you'll get approved quickly.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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05-31-2008, 04:04 PM
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#86 | |||
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Thanks, Ewiz. Going on disability and slowing down is not what I wish for. But, I don't see, right now, that another job is a good, viable option. So, thank you, for your good wishes that I get approved quickly.
I do not hope to sit at home all day, though. That would spiral me quickly into boredom, and, perhaps, a depression. I hope that I can find some meaningful volunteer work to keep me busy. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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06-02-2008, 01:53 AM
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#87 | ||
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Member
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I've been running like a nut here, but had to send you a hug sweetie! All I can say is that I have lost much as well, but unbeliveably, gained so much because of MS. The operative words for me have been LDN. If your looking for energy, that's what has helped me stave off the deadening fatigue of MS.
I so wish I could catch up here. Soon I promise. Hang in there and look for the positives. I'm sending you silver linings and hope you can see some! Hugs, Carolyn
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| "Thanks for this!" says: | AfterMyNap (06-02-2008), ewizabeth (06-02-2008), Ivy2 (06-02-2008), Kitty (06-02-2008), SallyC (06-02-2008) |
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06-02-2008, 08:59 AM
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#88 | |||
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Senior Member
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Oh Faith!! I'm so sorry you lost that job. I know going on disability isn't what you want, but maybe that is what you really need. Maybe God is giving you a nudge! One other thing is I know that the HR guy where you were working was doing some borderline things. Have you checked to make sure he terminated you legally?
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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06-02-2008, 01:14 PM
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#89 | |||
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Member
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I just love this thread!!! It's got everything in it... the good, the bad, the ugly, the pretties, and most of all HUMOR!!!
All "losses" I have I 'choose' to see as "the best possible thing that could happen" ya know... we do have choices! adopted that view 30 years ago, practice it, so no matter what happens I find the lesson, find the reason why it was for my best.thanks to you all for such thoughtful responses! 
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. . . first flare 7/22/2000
Dx 8/3/2000 RRMS-- no relapses since Betaseron 11/15/2000 Didn't miss a single injection the first 8 years. Now take about 6 shots off a year . Great minds discuss ideas, average minds discuss events, small minds discuss people. Hyman Rickover, "The World of the Uneducated", "The Saturday Evening Post", November 28, 1959 |
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| "Thanks for this!" says: | Ivy2 (06-02-2008) |
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06-02-2008, 10:48 PM
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#90 | |||
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Member
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But, I just want this to be over. I don't want the job back. I didn't ever want to work as a para forever; it was a job with convenient hours while my kids were still home, and one has graduated from HS, and the other will next year. I also don't want to continue to work for someone who doesn't want me there. The only other reason to contact an attorney might be to sue, and I don't wish to go that route. Besides, I know that he works with his attorney closely on HR matters, and my job is renewable on an annual basis. My guess is that he can terminate paras, just like he can probably terminate untenured teachers, without having or giving a reason. He's probably made sure that he's on firm legal ground. In related news, I went to see a disability attorney today. I found out that receiving disability takes much more time than I expected: 2 or 2-1/2 yrs instead of what I thought might take 6 months. So, I may need to look for a part time job after all. Just don't quite know what to do. I had hoped to get on disability and volunteer in something meaningful. I hope that there are meaningful part time jobs that I can get in my small city. ~ Faith
__________________
aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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