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-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

Twinkletoes 12-08-2008 10:31 PM

LDN for Dad's Lymphoma
 
I've been on LDN for MS since Aug. 4th. My GP prescribed it, not the neuro.

Soooooh, I took Dad, age 95, to the GP today along with a printout of info (from the LDN site) which, this time he did not read. He asked, "Isn't this the same medicine you are on for your MS?" I nodded and admitted that Dad had been taking my meds for the past week.

He asked if there had been any noticeable difference. I told him, "No. But I figure it can't hurt."

The doctor agreed and immediately got out the Rx pad and put Dad on 4.5 mg. of LDN daily.

I'm really glad the oncologist would not prescribe the LDN, because then Dad wouldn't be eligible for Hospice. :Head-Spin:

jnet1589 12-09-2008 01:58 PM

Quote:

Originally Posted by Twinkletoes (Post 421649)
I've been on LDN for MS since Aug. 4th. My GP prescribed it, not the neuro.

Soooooh, I took Dad, age 95, to the GP today along with a printout of info (from the LDN site) which, this time he did not read. He asked, "Isn't this the same medicine you are on for your MS?" I nodded and admitted that Dad had been taking my meds for the past week.

He asked if there had been any noticeable difference. I told him, "No. But I figure it can't hurt."

The doctor agreed and immediately got out the Rx pad and put Dad on 4.5 mg. of LDN daily.

I'm really glad the oncologist would not prescribe the LDN, because then Dad wouldn't be eligible for Hospice. :Head-Spin:


Thanks you guys for all your replies. I think I have slipped into secondary progressive ms, so I'm looking for a miracle and it's just not happening. I just get nerous when I see old symtoms creep up. I put a call down to the pharmacy in Florida - Skip's Pharmacy and he has heard this call a thousand times. But it's scary. I have decided, because of a few of you to tough it out. I go up to 4.5 mg in a couple of weeks. I have had a couple of vivid dreams lol. I've had those before. My poor husband. I wake him up and ask him - "is there a man standing over my bed?" he tells me no - I know and he knows it's one of those dreams so I roll over - close my eyes and just pray until I fall back asleep.

I am hoping that the banding feeling around my calf's feel less. My badder is a little better, but balance is still shot. I have three plaques on my cerebellum. Still hoping for that miracle. I'll wish on that Christmas star! :)

marion06095 12-09-2008 08:03 PM

I値l be going on vacation on Thursday. I値l still probably be able to check in most evenings. First, we go to Florida to be with hubby痴 folks for Christmas. Then we値l be in Jamaica visiting friends who live there this time of year. After that we will be driving from Florida to San Diego, where we will catch a flight to Hawaii. We値l be there for 3 weeks, and then back to San Diego. I am sure that by then we値l be very ready to get on home. I値l miss the kitties, as well as all the comforts of home. I am going to try very hard to pace myself on this vacation, but no promises. <<grin>>

Twinkletoes 12-09-2008 08:05 PM

Holy cow, woman!!! That's a heckuva lot of traveling!

I hope you have a great time! You'll post pics, right? :D

marion06095 12-09-2008 08:21 PM

Absolutely!

jnet1589 12-09-2008 08:25 PM

Quote:

Originally Posted by Twinkletoes (Post 422176)
Holy cow, woman!!! That's a heckuva lot of traveling!

I hope you have a great time! You'll post pics, right? :D

I live about 2 hours north of San Diego. We have a time share on Kauai. Last year was our first year in it. We took our kids there and our daughter got married there August 1st. It was wonderful.

I hope you have a wonderful vacation and a fabulous time!

SallyC 12-09-2008 08:25 PM

Quote:

Originally Posted by Twinkletoes (Post 422176)
Holy cow, woman!!! That's a heckuva lot of traveling!

I hope you have a great time! You'll post pics, right? :D

I ditto this and don't forget your LDN!:D

Oh and have a marvelous time.:hug:

SallyC 12-09-2008 08:27 PM

For the first time in 6 yrs, I feel my LDN may be failing me....I do hope it is only temporary.:eek:

Kitty 12-10-2008 09:54 AM

:hug: Sally :hug: I hope you get to feeling better. I've been having a lot of pain in my right leg recently. Not sure if it's due to the cold/flu I've had or the cold weather or what. Hopefully it's just a bump in the road for you and you'll be feeling better real soon. Here's another :hug:

Kitty 12-10-2008 09:56 AM

Quote:

Originally Posted by marion06095 (Post 422175)
I値l be going on vacation on Thursday. I値l still probably be able to check in most evenings. First, we go to Florida to be with hubby痴 folks for Christmas. Then we値l be in Jamaica visiting friends who live there this time of year. After that we will be driving from Florida to San Diego, where we will catch a flight to Hawaii. We値l be there for 3 weeks, and then back to San Diego. I am sure that by then we値l be very ready to get on home. I値l miss the kitties, as well as all the comforts of home. I am going to try very hard to pace myself on this vacation, but no promises. <<grin>>

Wow.....I'm exhausted just reading all the traveling you'll be doing! I hope you have a great time and be sure to take lots of pictures. You'll be glad to see home by the time you get back! :)


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