OK I take it all back....LDN is working just fine, again..:D

That's one thing I notice, that my illnesses never last long when I'm on LDN..:)

You know, I had that cold/flu that is now gone and I didn't have a flare up of sx with it like I normally would if I were sick. I kept expecting it but it never happened. Must be the LDN! :D

I can't wait to see if Dad has another good day on LDN. He started just over a week ago and his dose is 3.0 now. The Dr. Rxd 4.5 mg. dose, but it hasn't arrived just yet.

Dad's cancer (lymphoma) was beginning to give him pains at night and he'd have to get up a time or two and take some Tylenol PM. Last evening he was grouchy and didn't feel good at all. Hadn't been out to get his mail for the past 3 days (which is always a highlight). His dishes were piling up.

BUT this morning he was doing really good. Had a good night w/o having to take Tylenol. Not only did he go out and get the mail, but then he put out some seeds for the wild birds! He even ate a 2nd helping of pancakes for lunch (his appetite has been practically non-existent).

Keeping my fingers crossed for some more good days. The LDN may or may not do anything for the cancer. My hope is that Dad will at least be able to keep his energy UP and his pain DOWN.


EDIT AND UPDATE: The next day wasn't so good. Dad's Rt. leg gave out in the shower. I don't think it's a stroke or his rt arm would be affected, too. :( I wish we had known about his cancer months ago, then maybe the LDN would have had time to make a difference.

Oh Rochelle, that is such good news about your Father..HooooooRahhhh.:) I hope it puts him in remission.:)

I wish I had been able to get my best friend on LDN before she succumbed to lung cancer. She had a phone consult set up with Dr B on Monday, but passed on Sunday. I had been trying to convince her to at least TRY LDN for the prior year, but she was in denial . . . :(

I'm glad you recovered so quickly, Sally. :hug: LDN hasn't kept me perfectly stable either, but it has made a HUGE difference!! :)

Cherie

Hi it's been a while
 

Hi Sally, Cherie and All, *waving*

I recognize many names here.

My latest news.

I recently went to my Neuro for my check-up and SHE discussed LDN with me.:eek: She said she had some patients on it and wanted to know if I was interested. I have been on the other DMD's drugs in the past, and have not responded to them.:(

I said well okay, but she said she doesn't prescribe it. Huh! She said she can only write scripts for the DMD's. :confused:

She called me the next day and she said if I would like to try LDN, to go to my PCP and pick up the script. She had spoken with him. Huh again!

Needless to say, I got the script and sent it off to Florida. They called, and I am waiting for the meds to be delivered. I had PM'd Larry and he told me what dosage I should make sure the PCP writes. It was correctly written.

Now it is just a wait to get the med. I hope I respond well to this one. :)
Take care,
Lady

I want to go to YOUR Neurologist!! I wish they could all be so understanding. :rolleyes:

i kept getting my self ready for a big front of resistance from my neuro too. it never came. i was all ready to present my case,ready to argue my point for the whole appointment if need be. and he just said 'ok'.
man, did i feel let down.

but still. even with the LDN i still have good days and bad days. but when i sat down with a friend of mine who uses the copaxone, we compared our goods and bads and i have way more good days than she does, far fewer bad days than she does my good days are better than hers and my bad days arent as bad as hers.
she got an appointment with my neuro next week to see about getting a script for LDN too.



(BTW, my computers fixed)

Hiya Lady!! :Wave-Hello::welcome_sign: Glad to see you've found our forum and LDN thread. This is a very active and supportive place anyway, so you'll probably really enjoy the interaction here. :)

Well, that is one astute Neuro you have, and a keeper! ;) I understand that they want to try people on the mainstream meds first, but if there is no success with those methods, why not offer LDN? It's really a no-lose situation, and for many of us there is considerable benefit seen.

So, are you starting low at 1.5mg, or going straight on 4.5mg? Some people finding it easier to start at a lower dosage and work their way up, but many have gone straight onto 4.5mg with no problems either. Personally I had to work my way up (and down and up) to 4.5mg from 3.0mg, but I am very sensitive to ANY med ...

Glad to hear you are going through Skip's too. :)

I bet you are excited though, to at least have "hope" again. I sure hope you have as good of luck as I've had. :hug:

Glad you found us, and GOOD LUCK!!! Hopefully this works out to be be the best Xmas present you'll get! ;)

Cherie

I remember saying that my bad days, post-LDN, were still better than ANY good day prior to LDN. Nope, never "GREAT" like pre-MS, but it made life bearable again. :)

Cherie