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-   -   LDN Information & Check In (https://www.neurotalk.org/multiple-sclerosis/50240-ldn-information-check.html)

lady_express_44 12-10-2008 10:47 AM

WOW, Marion. I hope you have fun, and you SURVIVE!! :eek: I did a trip like that a few years ago, and I did well while I was away but it took 6 weeks to find my footing when I got back home.

Sally, I'm still trying to figure out what you mean by having an exacerbation when you have been SPMS for so long. :confused: Are you saying you are having an increase in symptoms? Are any new symptoms? Any chance you have a sickness or infection?

LDN doesn't take away all the symptoms (or ANY for some people), and many of us still have pseudo exacerbations, a few relapses and some disease progression. That is true when we are on ANY med available to us, and LDN has never claimed to be a "cure".

I still think it is the best option out there at the moment, and for me it helps a lot. The MonSter is always lurking, but he is a much more tame monster then he was pre-LDN.

Cherie

SallyC 12-10-2008 11:29 AM

Hi Cherie, A Pseudo Exacerbation is probably a better way to discribe it. No new symptoms.

I feel stronger today (thank you Lord) and my lower back pin is letting up, some. I just had a horrible cry jaggy, day, yesterday.:rolleyes:

lady_express_44 12-10-2008 12:22 PM

Quote:

Originally Posted by SallyC (Post 422537)
Hi Cherie, A Pseudo Exacerbation is probably a better way to discribe it. No new symptoms.

I feel stronger today (thank you Lord) and my lower back pin is letting up, some. I just had a horrible cry jaggy, day, yesterday.:rolleyes:

:hug: Sally :hug:.

My back has been giving me problems for the last couple of winters, and every year I end up back on a exercise program (which I should STAY on all year :rolleyes:). I started back on it three nights ago, any my back is already feeling slightly better. :)

I just don't get enough exercise and I sit far too much, particularly in the cold weather. :cool:

Here's the very EASY exercises my doc has me doing:

http://i12.photobucket.com/albums/a2.../Exercises.jpg

Cherie

SallyC 12-10-2008 12:43 PM

Thanks, Cherie, I do those stretches every day.....well, almost every day..;)

jnet1589 12-10-2008 02:21 PM

Quote:

Originally Posted by lady_express_44 (Post 422593)
:hug: Sally :hug:.

My back has been giving me problems for the last couple of winters, and every year I end up back on a exercise program (which I should STAY on all year :rolleyes:). I started back on it three nights ago, any my back is already feeling slightly better. :)

I just don't get enough exercise and I sit far too much, particularly in the cold weather. :cool:

Here's the very EASY exercises my doc has me doing:

http://i12.photobucket.com/albums/a2.../Exercises.jpg

Cherie

Thanks for the reminder. I am thin so people don't think you need to excercise. But my core is very weak. I sit too much also.

mom2five 12-10-2008 04:52 PM

Hello everyone! Just wanted to drop in for a moment. We are unpacking LOTS of boxes and getting things situated in the new house.

The LDN has made it possible for me to be like the energizer bunny, I am so grateful. I bumped it to 3.0 mg a week early after calling the pharmacy. The stress is monumental right now, but I'm hangin' in there. Hope to have internet at the house soon.

Hugs!

lady_express_44 12-11-2008 12:42 PM

Quote:

Originally Posted by mom2five (Post 422943)
The LDN has made it possible for me to be like the energizer bunny, I am so grateful.

That is GREAT news, of course . . . but EXPECT to crash after this!! That's the problem with LDN; we can do so much more, then don't understand when we feel bad after. :cool:

Cherie

jnet1589 12-11-2008 12:52 PM

Well I officially started my Christmas shopping yesterday. Picture this, I have a nice 2007 Camry, keyless - I thought you couldn't lock your keys in your car. Well stupid me did it yesterday. Macy's split in 2 at our mall last year. I forgot. went to one, bought a few things. Then, threw my walker ( embarrassed I use it anyway, but I do, threw everything in my trunk, including my purse because I was just going to drive over to the othef Macy's. Well, my transponder to open my door was in there. My poor husband has to drive a 1/2 hr from work to open my door and trunk so I could get back in my car. Then I went to the other Macy's and was there for 3 hrs. Today is a vege day to recoup my legs. i over do it.

PunkDizzle 12-11-2008 03:02 PM

quick update..

i think my body is starting to adjust to the 3.0mg dose as i have been starting to fall asleep at my normal time again. i started out at 3.0mg... so if this keeps going like this i think ill try to bump it up to 4.0mg or 4.5mg starting in Jan.. at least i know what to expect now..

oh and my dreams have been quite wild and vivid.. but i kind of enjoy them.

lady_express_44 12-12-2008 01:13 AM

Quote:

Originally Posted by PunkDizzle (Post 424047)
oh and my dreams have been quite wild and vivid.. but i kind of enjoy them.

ME TOO!! :)

Just don't try ignoring something that is going on in your life, that you should be dealing with . . . it'll haunt you in your sleep. :D

Cherie


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