WOW, Marion. I hope you have fun, and you SURVIVE!! I did a trip like that a few years ago, and I did well while I was away but it took 6 weeks to find my footing when I got back home.

Sally, I'm still trying to figure out what you mean by having an exacerbation when you have been SPMS for so long. Are you saying you are having an increase in symptoms? Are any new symptoms? Any chance you have a sickness or infection?

LDN doesn't take away all the symptoms (or ANY for some people), and many of us still have pseudo exacerbations, a few relapses and some disease progression. That is true when we are on ANY med available to us, and LDN has never claimed to be a "cure".

I still think it is the best option out there at the moment, and for me it helps a lot. The MonSter is always lurking, but he is a much more tame monster then he was pre-LDN.

Cherie

Hi Cherie, A Pseudo Exacerbation is probably a better way to discribe it. No new symptoms.

I feel stronger today (thank you Lord) and my lower back pin is letting up, some. I just had a horrible cry jaggy, day, yesterday.

Sally .

My back has been giving me problems for the last couple of winters, and every year I end up back on a exercise program (which I should STAY on all year ). I started back on it three nights ago, any my back is already feeling slightly better.

I just don't get enough exercise and I sit far too much, particularly in the cold weather.

Here's the very EASY exercises my doc has me doing:



Cherie

Thanks, Cherie, I do those stretches every day.....well, almost every day..

Thanks for the reminder. I am thin so people don't think you need to excercise. But my core is very weak. I sit too much also.

Hello everyone! Just wanted to drop in for a moment. We are unpacking LOTS of boxes and getting things situated in the new house.

The LDN has made it possible for me to be like the energizer bunny, I am so grateful. I bumped it to 3.0 mg a week early after calling the pharmacy. The stress is monumental right now, but I'm hangin' in there. Hope to have internet at the house soon.

Hugs!

That is GREAT news, of course . . . but EXPECT to crash after this!! That's the problem with LDN; we can do so much more, then don't understand when we feel bad after.

Cherie

Well I officially started my Christmas shopping yesterday. Picture this, I have a nice 2007 Camry, keyless - I thought you couldn't lock your keys in your car. Well stupid me did it yesterday. Macy's split in 2 at our mall last year. I forgot. went to one, bought a few things. Then, threw my walker ( embarrassed I use it anyway, but I do, threw everything in my trunk, including my purse because I was just going to drive over to the othef Macy's. Well, my transponder to open my door was in there. My poor husband has to drive a 1/2 hr from work to open my door and trunk so I could get back in my car. Then I went to the other Macy's and was there for 3 hrs. Today is a vege day to recoup my legs. i over do it.

quick update..

i think my body is starting to adjust to the 3.0mg dose as i have been starting to fall asleep at my normal time again. i started out at 3.0mg... so if this keeps going like this i think ill try to bump it up to 4.0mg or 4.5mg starting in Jan.. at least i know what to expect now..

oh and my dreams have been quite wild and vivid.. but i kind of enjoy them.

ME TOO!!

Just don't try ignoring something that is going on in your life, that you should be dealing with . . . it'll haunt you in your sleep.

Cherie