How are you feeling today?

Becky

It's a good thing to have it documented. I am glad you stuck to your guns with the person who was taking the report.

I went through a similar thing with the Teva people when I had the reaction with Copaxone They kept telling me that severe fatigue wasn't a side effect of Copaxone. I told them it wasn't unless someone reported it and my neuro wanted it reported. She finally relented and took the report.

Same issue when I had the anaphylatic reaction to Zantac. The doc said no one is allergic to this stuff. Yep, they were right until then. They sent a drug rep from Glaxo out to test me. Had a pretty stringent protocol to find out if it was the drug or the coating. It was the drug!

When people have reactions to medications and docs or bureaucrats don't believe you, you just have to stick to your guns to make them believe you. There is a reason why you are reporting these reactions. It's to help those who follow behind you.

Good for you Becky for sticking it out.

Cherie,

Thank you for doing the research on the intramuscular injections. I checked everywhere and couldn't find anything resembling what happened to me. I guess it will be one of those MS mysteries why this happened.

The left thigh reaction totally freaked me out. None of it makes sense to me.

There are so many things I don't understand about MS after all these years. Why did my heart try to stop beating until it got so bad I had to have my first pacemaker at age 45 and just got my second one? Why does my heart skip every other beat and I have to take medication to control that along with the pacemaker. Why do I have such horrible back pain? Is this part of MS? I think so but don't know for certain!

Some doctor's say it's all MS related and some don't think so. I tried to quit figuring it out and just go with the treatment.

It is very painful and I can't wait until the Gabapentin kicks. Thanks for your help and good wishes.

Hugs,
Becky

Bff,

In a word "crappy". It will get better though!

Sally,

Thank for for the huge huggy bear. Very sweet.

Cheryl,

I think it's a good thing to have it documented also. They had my first phone call on their records from May when I had the beginning of this. The rep. said to call my doctor for a topical ointment if it was bothersome. I knew that wouldn't help so I didn't think it was necessary. I should have called my Neuro but thought the rep. knew what she was talking about. They even transferred me to their nurse so I could tell her.

It's just so darn irritating when you know that something is wrong with you and the professionals blow it off. You know first hand from your experiences.

I have been on 2 meds that have been taken off the market now...Zelnorm and Vioxx. Then had the Chantix prescription that I didn't take after hearing the dangers of it's side effects, thank heavens. I called Pfizer and got a refund on my prescription a few months ago with a letter attached that was basically saying it wasn't the drugs fault. I don't remember exactly what the letter said but they refunded my money in no time at all. That does not happen!

It's ridiculous to have a "one size fits all" attitude with these drugs since we are all different. Ages, gender, size, allergies and other health problems. It doesn't matter, just take the shot and if you have a reaction, it's surprising to the drug companies.

Avonex transferred me to this woman to make the report to the FDA in the first place. She cops an attitude that didn't go over well with me so she had to listen to me until I was finished talking.

I don't know why this happened but it shouldn't have happened. I have to deal with this pain until the Gabapentin kicks in and I hope it will help. I may have to live with this muscle and nerve pain that has nothing to do with MS but caused by a huge needle I was using trying to prevent progression of MS.

Thanks for your support! I think I am getting cranky again. It was 106 yesterday and it is already 104 today so it's just miserable heat. I let my dog out long enough to potty and then get her right back inside. The A/C and fans are all on and I'm getting ready for my afternoon nap.

Hugs,
Becky

Becky, I can't believe you outed us, LOL. I hope you're having a better day and remember, watch out for Peepaw!

Beary,

Yes, I outed us as BB addicts! LOL Admit it, you know we would be so bored without it.

My niece Sarah is coming over to stay with me tomorrow so it will be a good day. She starts second grade Monday and loves to visit with her Aunt Becky. She is the sweetest!

I will watch out for PeePaw. Thanks for giving me the heads up about him.

I wouldn't exactly say I'd be bored. However, I would definitely say that I'd be way more productive and get to sleep earlier! (But yes, I'd also have less fun in the summer!) (And for any people looking at this who think we're crazy, well, okay, we are -- but it's not the actual show itself that makes it so fun!)

I would be bored since I don't have much of a life staying home all the time. LOL I agree with everything else you said. I love goofing on those people.