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Old 08-08-2008, 02:54 PM #31
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I thought I would update my thread a little bit.

It seems like my thighs are a tiny bit better but if I do much walking or activity, they start big pain. They look so swollen and feel so tight. I guess the thigh muscle is causing the swelling. I may try putting ice on them after my nap and see if that helps.

I was up and down a lot Tuesday when my Niece spent the day with me and my legs really hurt. I was pretty active yesterday also and the pain is really bad both muscle and nerve. I did not sleep well last night because I couldn't find a comfortable position for my legs.

I think I need to keep them elevated and be more inactive for a few days. What a drag

I started 2 Gabapentin a day on Wednesday and will start the full dose of 3 daily next Wednesday. I hope it starts helping soon. I feel a little goofy, not drugged out or anything but more fatigue and cog fog is worse for a few days after I started the pills.

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Old 08-12-2008, 05:45 PM #32
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My thigh muscles are still hurting and the nerve pain is still bad but might be a little bit better. I just feel terrible and am exhausted and my back is in major pain.

I woke up this morning and sat on the side of the bed to take my morning pills. Heart pill, Premarin, Lexapro, Gabapentin and Zocor.

I don't know what hit me but I thought about the Zocor! I posted on the Medication thread several months ago and remembered reading about Statins. I got on and checked a few of the threads and then looked up the side effects of Zocor.

Oh my gosh, there are tons of side effects from Zocor including muscle damage and atrophy. It blew my mind when I saw that.

I started Zocor 4 days before my problems began in May. I got out my receipt from the pharmacy and checked the calendar to be sure and then made a call to my Neuro's office.

My Neuro's nurse called me back and I told her that I was still just miserable and my thighs were not any better after stopping the Avonex shots. I told her that I don't think I mentioned anything to Dr. Husain about starting Zocor. I didn't even give a thought after she saw my thighs and the damage.

I asked the nurse if this could be my problem and she said yes. Zocor had terrible side effects and that I should stop taking it immediately and tell my PCP about it. I will see my Neuro in Oct.

It all makes sense to me now. I may be all wrong about this but it sure sounds logical to me. If the Zocor can cause muscle damage, it would go straight to the site areas on my thigh muscles where I have been injecting and it is weaker than the other muscles. It just doesn't make sense to me that both of my thighs could develop muscle and nerve damage at the same time!!

I guess I will have to wait and see what happens when I stop the Zocor. I hope that I have found the answer to this. I have searched everywhere and have not found any information about this. I pray that this damage will not be permanent because it really hurts so much. I am worn out.
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Old 08-12-2008, 08:05 PM #33
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Oh, Becky, I hadn't thought of the Zocor either although I remember reading about the muscle damage it can cause. Your PCP and pharmacist should have been on top of this.. Darn Docs!

I hope this solves the problem for you, Becky. I 'll be praying for you..
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Old 08-12-2008, 08:19 PM #34
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Now this makes MUCH more sense to me. It didn't seem that it could be a injection reaction of any kind, since the pain happened in the opposite leg of the shot . . . and especially if the doc thought it was NOT the med itself.

I don't know why it didn't occur to me either, that maybe it was another med you started around the same time.

If it is because of a side effect from Zocor, would this a temporary side-effect, or could it potentially permanent damage?

Cherie
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Old 08-12-2008, 08:22 PM #35
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BECCCKKKKY!!!!! Oh my!! I hope that's the answer too!
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Old 08-13-2008, 12:33 AM #36
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Sally,

I don't remember seeing anything about muscle damage from Zocor but remembered it had bad side effects. My PCP checked my blood 6 weeks after I started Zocor and everything came out great. My cholesterol was in the normal range, it really works fast.

Thank you for your prayers.

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Oh, Becky, I hadn't thought of the Zocor either although I remember reading about the muscle damage it can cause. Your PCP and pharmacist should have been on top of this.. Darn Docs!

I hope this solves the problem for you, Becky. I 'll be praying for you..
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Old 08-13-2008, 12:56 AM #37
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Cherie,

I know!!! It's the only thing that makes sense to me now! It has been driving me nuts trying to figure out how this happened!

My Neuro took one look at my thighs and I described the pain and she knew it was muscle and nerve damage. She said it was serious. I didn't even think about it being from Zocor since it was in the area of my thighs where I inject. She was just as puzzled as I was at how it could happen to both thighs within a few weeks. She said it wasn't the Avonex because my symptoms hadn't changed and the problem was in my thighs.

I have no idea why I thought of it this morning! It just hit me, I guess because I just don't seem to be getting any better. I keep thinking I am but I'm trying to be optimistic because I'm not better. When I started looking for my zocor receipt and saw the date I started it was 4/30 and my reaction started 4 days later, I couldn't believe it.

I googled zocor and side effects and there it was. It's a rare side effect. The muscle and nerve damage really scares me because I don't know if it will heal. They look terrible and I have a couple of small numb areas. What a mess!!

Everybody I know is on cholesterol medication so it never crossed my mind until today. Everything we take has side effects. I'll just have to wait and see how things go.

When my Neuro saw the damage to my thighs, she said she did not know if it would heal but hoped the Gabapentin would help the nerve pain. I still can't believe that I didn't tell her I was on zocor because she would have picked up on that immediately.

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Now this makes MUCH more sense to me. It didn't seem that it could be a injection reaction of any kind, since the pain happened in the opposite leg of the shot . . . and especially if the doc thought it was NOT the med itself.

I don't know why it didn't occur to me either, that maybe it was another med you started around the same time.

If it is because of a side effect from Zocor, would this a temporary side-effect, or could it potentially permanent damage?

Cherie
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Old 08-13-2008, 01:00 AM #38
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Beary,

I think it has to be the answer, don't you? If you get a chance google zocor and see all the site showing side effects. It fits exactly to the problems I am having. I can't believe I didn't tell my Neuro about the Zocor! I'm scared that this damage will not go away. I don't know if muscle damage like this and nerve damage can heal.

I just hope I get some relief stopping the Zocor. I am so sick of all these weird things happening to me. I feel like Murphy's Law is on my back.

Hugs,
Becky

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BECCCKKKKY!!!!! Oh my!! I hope that's the answer too!
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Old 08-13-2008, 08:42 AM #39
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Becky, I did look it up and saw what you're talking about. I hope it will heal, too!!! What did your PCP say?
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Old 08-13-2008, 11:42 AM #40
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Beary,

I am waiting for my PCP's office to call back to see if she wants me in sooner than my Aug.25th appointment. She is only in her office near me on Monday and Wednesday and it was too late to call yesterday to talk to her nurse. I will let you know when I hear from her nurse.



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Becky, I did look it up and saw what you're talking about. I hope it will heal, too!!! What did your PCP say?
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