Thanks. Still dealing w/ mobility problems (using a cane), and fatigue.

~ Faith

Sending hugs and prayers your way.

Faith, I always find it hard to say congratulations on getting your disability benefits approved because it's a bittersweet occurrence. You get money, but it means that you really DO have a severe problem. And yes, you would rather be working. But you know what? You don't need the stress and the strain that it puts on your body.

Now at least you will have the time to recuperate. And you can always do volunteer work--like becoming an adult literacy tutor if you like teaching. So look on the bright side of it.

Sorry to hear about the flare. That stinks. Hope you recover well and don't have any new lingering sx from it.

Well, I have NO problem is saying a big congrats on your SSDI! It is bitter-sweet, but life is what it is. I do not qualify due to hours and things are not good.

I'm happy to hear you are out of the hosp, and a bit better. I hope the new meds work well for you.

Oh, I know well what you mean by cog problems. I have not been right since I was dxed and I have a lot of cog issues. Hope Yours resolve as you improve!

Hi Faith,
I've been wondering about you because I haven't seen you posting. I'm so glad to hear you got the SSDI approved! Congratulations! I know that is a big relief for you.

I hope you can get the insurance issues straightened out with copaxone and get started on that soon.

Take care of yourself.

Faith, I'm sorry to hear about your troubles but hope things are looking up now.

Yeah -- bittersweet. That's exactly it.

The mixed emotions really actually hit me when I read the letter that my doctor drafted that said that I was "totally and permanently disabled" Do not attempt to rehabilitate. He used that terminology, at my request, because someone else I knew recommended it. But, he must have believed it.

Thanks, all, for your good wishes.

~ Faith

sending you best wishes Faith.

Faith, sorry that you had to spend time in the hospital but very happy that you seem to be a bit better. I hope the switch to Copaxone will prove to be the right choice. I have been on Copaxone for a few years now and that seems to be the right choice for me.

I am super happy that you are getting your disability money and will be able to quit working. There is no way around it - or so it seems overdoing will put us in bed.

Question on the help for government employee (I do not recall the initials), I wasn't aware that that existed. That is interesting to know.

Anyway, I wish you the best and thank you for the update. Rest!

Warm yet gentle hugs to you ~! Sorry you are going through such a crappy time of it~!

Ok its a good thing the SSDI was approved even if your MD had to use that strong language.. its the way to get it done. The states LOVES loopholes.. in fact has contracts with MDs to find them. So your MD just closed them up for YOU to get your due. AFter all you worked and worked and put $$ into SS to get this. This is YOUR well earned money.

So why you are forced now to slow down..going against your ethical work nature.. I just wonder what it is you are to learn or to accomplish from this stinky place you find yourself in....

The reason I say that is because there was a time I was disabled and no doc would touch me anymore.. I was written off. I was left to languar in my bed... unable to work.. a single mom, unemployed..unable to care for my 2 school age children and one preschooler.

OH believe me..I had MAJOR pity parties.. which are ok.. helps to get the nasty emotions out. BUT.. then I refused to accept it was permanent either. I prayed and prayed..I closed my eyes and put my finger on a doctos name in the yellow pages.... and he worked a miracle ...my "condition" was corrected.. painfully over many many months and years.

I no longer have this spine problem.. not entirely anyway. I CAN walk now.. and with my lesions and neuro issues..I found another guru.. my beloved nutritionist whose specialized work corrected so many imbalances and detoxed my wrecked up brain.

I do have my balance back.. my fatigue which put me in bed all the time.. is GONE!!! I found alternative ways to get my brain healthy.. and then the rest of my body followed.. slowly.

I still struggle a bit.. but I am now able to work !!
We really dont know the road ahead.. as things COULD and DO change for us. Here's a change to let others care for YOU.. have your FAITH hold you up a bit.. until.. your miracle finds you !!!

Hence my signature.. and I am walking proof that miracles DO happen!!

Remember.. you are NOT ALONE.. we're here for you for the crappy times..and will celebrate you and your life!!

Jan