FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#31 | |||
|
||||
Fabulous Belizean Member
|
Quote:
and you're right Erin, in a few weeks it will be 30 years. (November 18, 1978 was the day he died.) Ryan was my Congressman... (my first time at the voting booth was a vote for him, in 1976) and I remember Jonestown all too vividly. ![]() http://en.wikipedia.org/wiki/Leo_Ryan
__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#32 | |||
|
||||
Magnate
|
Riverwind makes special SPECIAL brownies apparently.
Provided her ingredient stash is ready to go. Least that's the story I've heard. ![]()
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#33 | ||
|
|||
In Remembrance
|
Well dang it all!! I am always the last to know these things!! And here I rarely eat red meat, guess I AM already on the way to being cured! YAY MEEEEE!!! Doc will be soooooo happy when I see him this month and tell him he will be cut loose very soon!! Sigh. Yellow journalism!!
|
||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (10-15-2008), ewizabeth (10-14-2008), FranksAngel (10-15-2008), GladysD (10-21-2008), JessieSue (10-14-2008) |
![]() |
#34 | |||
|
||||
Senior Member
|
ARGH!! Not another 'cure'!! No wonder my HUSBAND asked me if I'd heard about the 'MS diet'!! I about strangled him, LOL. He heard about from some woman at work who, of course, doesn't have MS. I'm sure I'll be getting some 'well-intentioned' phone calls from people who think they're telling me something ground-breaking
![]() ![]()
__________________
Multiple Sclerosis-Dx May 2007 . |
|||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (10-15-2008), ewizabeth (10-14-2008), FranksAngel (10-15-2008), GladysD (10-21-2008), JessieSue (10-14-2008) |
![]() |
#35 | |||
|
||||
Junior Member
|
Yes, sadly folks make this mistake for all kinds of reasons; some to make a buck, but most do it out of excitement. They get excited that they are suddenly not only feeling better, but better in a way they have never felt before. That and the speed at which the change happened, and seems to keep getting better for them, leads them to believe they are cured or have found the cure. You have to give them some credit though, (thouse that are in this catagory) even in light of their excitement, they took the time to come tell someone about it, and didn't keep it to themselves. At least they were trying.
Having said this, I'll also say that this doesn't keep us, myself in front of the line, from being angry to actually spend more than the time it took to read the article to find out it just was not true. Word to the wise here....when they find the sure, it will hit the news so fast you won't be able to not see it. This is because MS is so close to several other diseases that when they cure one, it will likely be able to be adapted to sure others. So take heart! The cure is out there, and we will find it. MSDave |
|||
![]() |
![]() |
![]() |
#36 | |||
|
||||
Member
|
I had the mag out again for our SHG meeting tonight and here is the email to voice your opinion DearWW@bauerpublishing.com
and to share a story wwfeatures@bauerpublishing.com They pay $250 if they publish your feature story. story was on pg 40 - and in index it was called "Ivy reversed her MS symptoms using a special diet". but the title on pg 40 is She cured her MS--with food!
__________________
If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals |
|||
![]() |
![]() |
![]() |
#37 | |||
|
||||
Magnate
|
I'm going to try and cure my MS today with a trip to the burger joint for a veggie burger. AFK!
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#38 | |||
|
||||
Member
|
Dear Woman's World,
Please give us with MS a break and admit your story in your Oct. 13th magazine on page 40, She cured her MS with food!! is completely a falsehood. I will now hear from friends, family, etc. that if I just eat right I can cure my MS. I have already received one call. Oh, if it was only that easy. I'll agree that if ALL of us eat right we will feel better but there is no cure for MS at this time unfortunately. Ivy probably has RRMS (remitting-relapsing MS) and fortunately she has been relapse free not cured! I walk, I talk, I think, and I see--I can't say that for all people with MS but please don't make them feel guilty because maybe they didn't eat right and may have caused their own disability. You have done the MS community a great injustice by publishing this garbage and I pray that you refrain from doing stuff like this again just to sell your magazine. Thanks Brenda
__________________
If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals |
|||
![]() |
![]() |
![]() |
#39 | ||
|
|||
Junior Member
|
Perhaps they should have that alien baby born with two heads who looked like Elvis try "the cure"
![]() |
||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (10-15-2008), ewizabeth (10-15-2008), FranksAngel (10-15-2008), GladysD (10-21-2008), JessieSue (10-15-2008) |
![]() |
#40 | ||
|
|||
New Member
|
Quote:
Anyway, I totally understand your frustration and I too get frustrated when the media spins my story for sensational purposes. Please do know though, I did write the book to help people. I lost one of my best friends, who was my boyfriend in high school and who also had MS to a suicide shortly after his 30th birthday. He took one of the disease-modifying MS medications which exacerbated his underlying depression. I started writing the book when my son was 6 months old after my friend said he would follow my diet if I ever managed to get it published. My husband was a surgical resident at the time and worked over 100 hours a week (he spent every other night in the hospital) and we shared a car with no family to help. After considerable effort and after acquiring multiple testimonials I finally did get the book published but it was too late to help my friend. We donated the proceeds of our first 10,000 books sold ($15,000) to the Montel Williams MS Foundation in my friends name (by the way, we were on The Montel Show and Montel too strongly believes in diet, exercise and nutritional supplementation.). Again, I understand your frustration, but I’m frustrated too. My husband and I have run multiple “Lifestyle Makeover Programs” in both south Florida and New Jersey and I have hundreds of testimonials from my programs and from the over 55,000 people who have bought our Gold Coast Cure book---diet and lifestyle make a HUGE difference in many inflammatory conditions. No, diet doesn’t “cure” the diseases, but the current medications don’t cure them either---and many of the medications have side effects that are worse than the actual disease itself! Trust me, there’s no downside to eating healthy “whole foods”. Any doctor who doesn’t advocate a healthy diet is doing his patients a huge disservice. In my opinion, the neurologist that told my friend adopting a healthy diet was “a waste of his time” caused my friend to lose hope and when the medications and medical community failed him he took his own life. It’s a tragedy that I am certain could have been avoided. |
||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
Virtual World versus Real World | Social Chat | |||
One woman's search for ALS cure | ALS News & Research | |||
A Woman's Dictionary | On the Lighter Side | |||
“A world of friends is a world of peace” | ALS News & Research |