Glad to hear the tooth extraction was easy, and you are "feeling" a little better.

If this stir-up was due to infection, you should be feeling better in no time. Just make sure to not get the "hole" infected now (or dry rot), Mr.

Cherie

hi Cherie,

The tooth and socket went fine, I finished off the antibiotics and have had some really good cog fog days and feeling good but the arm issues and the "trunk" numbness is still here along with my hands being numb, I guess THAT stuff will take longer to resolve..........Now I will shift over to the pancreas cyst, I have an appointment with the doc at 1:00 today, I want it DRAINED because it has been giving me trouble......we'll see what HE says, I have not even MET the guy yet, I might not even LIKE him........... I still have NOT heard about the antibody test, I will call the neuro's office today if they do not call me....

My doc increased my neurontin to help with the arm troubles and it has seemed to help a little with the duration of these attacks it DOES work.......wow, I didn't have aby faith in that drug before but now I know it works...

Joe

Hi Cherie,

Good news is I have NO antibodies to the Tysabri and can continue with the infusions with a few things to pre-medicate with, (Benedryl and Pepcid). Kind of bad news is that I may not be able to get the PORT before the 17th which is my next infusion, I hope that is not the case and I can get it soon......She did say I probably have some imflamation of all the lesions again that was triggered from the infected tooth making me feel like I was back in the original relapse....

Also good news is that she talked to the pancreas surgeon and I CAN have the surgery, but she also said that it COULD trigger another relapse but is not sure and said we will deal with THAT if it comes......One thing I haven't told you yet is on Monday the surgeon said I don't have a "cyst" on my pancreas, it is a "Mass" that has been growing for a number of years and he wants to remove about a quarter of my pancreas, (near the bottom quarter)......I do feel a bit better in my "cog fog" but that is about it and I think I attribute that to the Tysabri. SO in conclusion, I have to take care of the pancreas and can continue the Tysabri and my SSDI is also in the works........I feel good about all things now and for the time being all is going as hoped and prayed for.....

Thanks Cherie, I will keep you posted on things...

Joe

Good to hear that your antibody test came back negative!

Sounds like good news almost all around, Joe. No antibodies, getting pre-treated with antihisitmines, a psuedo attack from the tooth (not a "real" attack) . . . and now you know that you are affected by infection the same as me and can be far more vigilant about that.

I hope they can get that port in before the next infusion too.

I have had 2 or 3 operations since the MS became a driving force in my life, and the only problem I've had is recovering from the anesthetic. Being a smoker, I used to be up and about within 15 min of any surgery, but now I find that I am too wiped out to care much. What used to take 2 or 3 days to recover from now takes a week . . . but I have never had a relapse. Since you and I seem to be on a similar path, I'd say you are going to be just fine. Just expect more recovery time ... but that's not too bad when we don't have to work.

Do we need our pancreas for anything . . . or is it like the gallbladder and tonsils that are not so necessary?

The cog fog should continue to improve over the coming months, at least if you follow the same pattern as I have. All up, it was about 18 months before I totally felt like "me" again . . . but the good news is that you shouldn't have to go through that type of TM attack again. Once is enough, eh? (Just don't ignore infection cause it can lead to a full blown attack next time!!).

Glad to hear things are looking up for you.

Cherie

Hi Cherie,

I don't know if we DO need a panceas for anything, I think there are meds we can take to help with the pancreas actions..............heck, there are meds for EVERYTHING these days.....

I know I am going to be OK, I had to call my neuro today because my "T" lesion has been acting up causing just about all the numbness I had at the beginning to return. I feel JUST like I did in July, MINUS the pain. This is STRANGE that I am right back to where I was in July except no pain but all the numbness plus a bit more?

Thanks for the words, we are similar except for the similarities in the veins huh?

I have 11 days for them to get a port in me, the neuro did say that they do have patients pre-medicating with Benadryl and Pepcid with their Tysabri and they are doing fine, I also have to remember that I am 4 months into all my OTHER issues too and I am taking care of THEM as well and they are close to solutions.....

Oh, don't we just have a fun filled life.........

Hugs back at ya Cherie,

Thanks

Joe