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Old 11-06-2008, 09:31 PM #31
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JoeMac JoeMac is offline
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Location: Erie, Pa
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JoeMac JoeMac is offline
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JoeMac's Avatar
 
Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
15 yr Member
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Hi Cherie,

I don't know if we DO need a panceas for anything, I think there are meds we can take to help with the pancreas actions..............heck, there are meds for EVERYTHING these days.....

I know I am going to be OK, I had to call my neuro today because my "T" lesion has been acting up causing just about all the numbness I had at the beginning to return. I feel JUST like I did in July, MINUS the pain. This is STRANGE that I am right back to where I was in July except no pain but all the numbness plus a bit more?

Thanks for the words, we are similar except for the similarities in the veins huh?

I have 11 days for them to get a port in me, the neuro did say that they do have patients pre-medicating with Benadryl and Pepcid with their Tysabri and they are doing fine, I also have to remember that I am 4 months into all my OTHER issues too and I am taking care of THEM as well and they are close to solutions.....

Oh, don't we just have a fun filled life.........

Hugs back at ya Cherie,

Thanks

Joe

Quote:
Originally Posted by lady_express_44 View Post
Sounds like good news almost all around, Joe. No antibodies, getting pre-treated with antihisitmines, a psuedo attack from the tooth (not a "real" attack) . . . and now you know that you are affected by infection the same as me and can be far more vigilant about that.

I hope they can get that port in before the next infusion too.

I have had 2 or 3 operations since the MS became a driving force in my life, and the only problem I've had is recovering from the anesthetic. Being a smoker, I used to be up and about within 15 min of any surgery, but now I find that I am too wiped out to care much. What used to take 2 or 3 days to recover from now takes a week . . . but I have never had a relapse. Since you and I seem to be on a similar path, I'd say you are going to be just fine. Just expect more recovery time ... but that's not too bad when we don't have to work.

Do we need our pancreas for anything . . . or is it like the gallbladder and tonsils that are not so necessary?

The cog fog should continue to improve over the coming months, at least if you follow the same pattern as I have. All up, it was about 18 months before I totally felt like "me" again . . . but the good news is that you shouldn't have to go through that type of TM attack again. Once is enough, eh? (Just don't ignore infection cause it can lead to a full blown attack next time!!).

Glad to hear things are looking up for you.

Cherie
__________________
Dxd RRMS 12/23,06, Copaxone 2/07 to 9/07 - Rebif 10/07 to 7/08, BAD flare with Transverse Myelitis & Pancreatitis.....,9/08 Pseudo Cyst!!!! and another TM attack. Started Tysabri 9/22/08 - 10/21 Allergic reaction to Tysabri, SSDI Approved 11/14!! Continued Ty 11/17 with a Pre-medicate. Solumedral 12/11-12/13 Ty #5 Jan 12th!
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