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#1 | |||
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Grand Magnate
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I thought you were on the comp too much last night
![]() ![]() Sorry to hear the headache caught up with you. It's time to do lots of laying around, and if it doesn't let up within about 3 days, you might have to go get the blood patch. REST!!!! Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Gazelle (11-21-2008) |
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#2 | |||
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Magnate
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3 cheers for MM!
![]() Get some rest hun, feel better!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#3 | |||
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Fabulous Belizean Member
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ahhhh, Legzz...
I've had days and weeks like that. unfortunately, stress exacerbates MS symptoms, but try telling LIFE to just take a break... anyway, all I can say is, with your brains and sense of humor, you WILL get through this, with panache and grace. hang in there, we're all rooting for you... the diagnosis-time is arduous and exhausting, and I pray that things will settle down and stabilize soon for you. ![]() ![]() ![]()
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And the trouble is... if you don't risk anything, you risk even more. - Erica Jong |
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#4 | |||
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Magnate
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oh yeah we filled out the paperwork for the rebif while I was there he is saying no to the LDN for now because he wants to make sure he doesn't have to put me on anything for the pain if the steroids don't work and the LDN may block the pain meds. But he is not oppsed to the idea in the future if I am still interested. For now he likes rebif. he has seen better results than with copaxone but if I start having the negative effects he will switch me to C.
pizza tastes like rubber. I never knew an IV could leave a bad taste in your mouth. |
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#5 | |||
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Magnate
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Quote:
While the headache I had (following spinal) was enough to cause me to black out, the fear of the taste of the medication from the IV contributed to my panic ![]()
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Gazelle (11-21-2008) |
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#6 | |||
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Member
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Horrible taste. eccchhhh I hate 'em but they sure do work. The lying around thing after an LP is right. I had mine the "week" of testing too and had to go the other tests despite knowing I should lying down. I tried at all the offices to tell them I needed a bed or bench while I was waiting and most of them where good with it. The nuclear med waiting room only after I blew chow, but then they took me seriously.
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Keith - dx'd 2/07 "Where's my Uranium PU36 Explosive Space Immune System Modulator?" rebif 3/07 - 12/07 relapse 2/08 copaxone 3/08 - 11/08 relapse 5/08 relapse 10/08 rebif 2/09 Minocycline 6/09 Not a damn thing 7/09 . |
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#7 | |||
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Magnate
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Quote:
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"Thanks for this!" says: | Gazelle (11-21-2008) |
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#8 | |||
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Magnate
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HUGSSSSSSSSSSSS dear...good luck on the steroids..and hope they kick in some better days for you!! very big HUGSSSSSSSSSSSS, sarah
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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