((((((((((((Joyce)))))))))))))

(((((((((((sally)))))))))))

Check-in time:

How is everyone doing? It has been over a week since this thread saw any activity. Are we all doing so well we don't have to talk about it or what?

I am still doing very well on LDN. I thought I was going to have a relapse, felt a little off for a week or so. I think it is mind over matter with me. I am having a Thyroid biopsy on Tuesday. Getting nervous that's all. I'll be glad when it's over and done.

Anyone else have an update?


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I've been doing very well and summer is not my best season. I asked my husband to turn the air conditioning off in the car the other day - he was still complaining that he was hot. That never happens. I'm usually the one responsible for freezing him.

I've never been a morning person at the best of times but I had a couple of days last week that I woke up NOT tired. Can't remember the last time that happened. Unless I really overdo it I'm not bothered by fatigue but I usually feel slightly tired in spite of a decent night's sleep.

I'm finding that I'm able to get more "extra's" crammed into my day without paying the price later.

I'm been taking 3 mg of LDN (since June 15) and was planning to increase that, but if I'm doing so well, I'm thinking, why change what's working? Any thoughts on that would be appreciated. I've had MS for 10 years and although I have some mild residual symptoms, I haven't progressed. My two flares were six years apart and the last one was over three years ago.

Ironically, had I been taking the DMD that was offered nearly nine years ago, it would have been given all the credit.

C

Lady, Congrats on doing so well. Good luck with the Thyroid Biopsy..Ihope it's benign..

Carol..Grrrrrreat!!! Yes, stay at the 3mg for as long as you are doing so well. I was on 3mg for 2 years and only then, could I handle 4.5mg.

I am still doing well. thanks for asking.

Other than seasonal allergies I'm doing great!

For the first time since I've been on LDN I forgot to take my pill the other night. Didn't realize it till the next morning when I was getting my vitamins and thyroid med out of my pill dispenser. I almost panicked!! All day I waited and watched for signs of spasms or spasticity but I had none! I didn't want to mess up my schedule by taking it that morning so I just waited and took my normal dosage that night. I'll never forget it again!

I've often been tempted to skip it for a few days just to see how I'd feel but I'm too chicken.....and I'm afraid I may set off a relapse. It's just not worth it!

I've missed one day a few times and didn't notice any difference in my heat tolerance, which is my main area of improvement. I read somewhere recently that it's a good idea to skip a day now and again so the LDN doesn't build up in your system. That makes sense in a way, but when you only take such a small amount once in 24 hours, would it be able to build up?

C

Carol, 3.0mg is fine for protecting you, so I agree you do not need to up it. If you decide to at some point later, just to "see", I would not do it when the weather is changing to cold. As it is, I have to drop down to 3.25mg at the end of Sept/beginning of Oct, for about 3 weeks every year. Then I go back up to 4.5mg, cause I am fine at that dosage.

Remember too, that although you can do more ... you are doing more!! So many people push themselves much more on LDN in the early days, then don't understand why they are having some issues; muscle fatigue, etc. I looked at it as "look how much I am doing ... it's no wonder!!".

Glad to hear you and Jappy are off to a great start. The really great part is when this goes on for months or years, and you can COUNT on feeling mostly ok on an ongoing basis.

I'm doing well too ... as per usual. No issues except when I got bronchitis and a sinus infection. ALWAYS TREAT INFECTION RIGHT AWAY!!! I did, and didn't end up in an attack or anything, but have learned that lesson the hard way in the past.

Cherie