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Old 02-17-2009, 08:18 AM #16
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
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15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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aww laura

I whole heartidly agree with you. you CAN reach a point of quitting. you CAN kill love. You can beat a dead horse. it wont get up, but you can beat it. I am so happy that you have come to a place of understanding and care in your life. You are NOT quitting on fighting MS, you are simply shifting gears.

I have been on Copaxone for a long time now. BC (before Copaxone) yes, I had ALOT of inflammatory issues, and clearly there was something wrong with me, BUT I had some energy. I had some sensible life to live. I was able to be up and about. it took me a full year to get used to the copaxone, and it was a rough year for me. I lost my energy, I lost my drive, I feel sluggish, and drained all the time. I dont have the energy to go on vacation, or to do the things I considered a "normal" part of my day. The lumps were all but gone, and then...they changed the formula on the mannitol. Now I am back to big lumps, and welts, and it STINGS! I have changed my diet, and missed very few shots. My MRI remains stable, and while my lesions have not increased, they have not decreased either. They consider that 'stable' and tell me thats the goal. Well, would it have stayed the same OFF the copaxone? I dunno...just many of the questions that run through my head.

you are not alone sister. I too am standing in the line up of folks wondering if all this pin cushion treatment is worth it. If my MS was out of control, and I was collecting lesions like a child with baseball cards I think i would cling more tightly to my needles. For now, I am lumpy, bumpy, tired, grouchy, exhausted, and kinda fed up. I am on the fence, and may someday follow you off this pointy surface.

Let us know what you decide and how it turns out.
__________________
RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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