Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-22-2009, 12:06 AM #6
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Except one person, everyone that I have heard of, that has had a MRI, has had zero to extremely little activity since they started on LDN.

Two that come to mind, from this forum, are LarryLDN and PrettyPearl(girl?). Both had great results. Polar(express? ~ can't remember the last part her nickname at the moment) also had one recently, with not such great results. She is the one person that I've heard of with bad results, but I don't know how long she was on, dosage, whether she stayed on consistently, or . . . ?

Hopefully they will come on and tell us about their experience.

My neuro has always been of the opinion that there is not much point in getting a MRI if I have remained stable throughout this period. I suspect a lot of neuro's have this approach, no matter what med we are on ....

I didn't have a MRI before starting on LDN, and the one I had years before was without contrast. I don't really have a "baseline", but I am getting another MRI after being on LDN for 4 yrs now. The purpose is mostly to evalute my spinal lesions against NMO/Devics though.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (02-22-2009), SallyC (02-22-2009)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Question about 6 question cdr form Bobby17 Social Security Disability 18 07-14-2013 11:36 AM
Johns Hopkins Patients~ I have a question! legzzalot Multiple Sclerosis 6 02-21-2009 05:20 PM
in the news. PatientsLikeMe.com - Patients helping Patients BobbyB ALS News & Research 0 02-25-2008 09:05 AM
PatientsLikeMe.com by patients, for patients BobbyB ALS 4 01-25-2007 07:50 PM
Question about RSD caused by surgery for Tos patients... Gromlily Thoracic Outlet Syndrome 13 11-08-2006 05:05 PM


All times are GMT -5. The time now is 07:08 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.