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#1 | |||
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Elder
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I'm not having a pity party, just feeling kind of pensive. I can't remember the last time I felt good. Five years? More?
Somehow it's gotten to the point where a "good" day doesn't mean what it used to...back when nothing hurt, everything worked, there was no foggy film over my brain...back when I could go all day without thinking about how near the bathroom was, what I dared to eat, if a symptom was getting worse or not. When I wasn't circling the drain by mid- to late afternoon. I can't remember how it felt when good didn't mean "not too lousy". When "fine, thank you" didn't mean "no worse". I should stop thinking and go to bed.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#2 | |||
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Magnate
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I'm so sorry that you don't feel "good"
I remember when I used to wake up singing every morning (honestly!) Now I wake up and moan and groan and stretch and test joints and muscles, and I look in the mirror and wonder why I always look like I am -tired/angry/disgusted/depressed/old! (pick one!) I've decided to go with overweight cause I can do something about that when it comes to the aches and pains, and sunexposure rather than age cause I can accept those frown lines and wrinkles if I blame them on squinting at the sun!! ![]() I wish you more joyous days and less pain, more days of feeling like the 'jack in the box' rather than the drain circling!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: |
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#3 | |||
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In Remembrance
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The meaning of "feeling good" has changed for me, over the years. I felt good when I was 20, WaaHoo!!!!
![]() I feel good now, too, though, only in a different way. It's good to be alive, it's good to not be in pain, I feel Good when it's not humid, when it's cool and when I can still stand up on my own two feet...one more time. ![]() ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: |
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#4 | |||
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Grand Magnate
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Funny, I've been thinking about this lately, too..I can't remember the last time I felt "good"..Probably would recognize it anymore..
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#5 | ||
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Member
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The sad thing is that I did not appreciate how good I felt when things were good. I did not know that my situation would change. I just took it for granted that I felt the way I was supposed to feel and never thought it would be any different.
Also, I can't remember when I started to not feel good. It must have just snuck up on me. Either that or it has been so long I can't remember that far back. |
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"Thanks for this!" says: |
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#6 | |||
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Elder
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BTY...
![]() Wish I could make it all better for ya... Before I get out of bed in the morning, I thank the universe for another day, and for all of the people in my life that have shown me love. Then I get up and test the balance/creaky joints, etc. Sometimes the crummy sxs overshadow the gratitude I felt before arising...but at least I start the day in a positive mode... yeah, it sometimes is downhill from there, but sometimes the positive attitude overcomes any MS crud. Probably sounds kind of New Agey, but it helps me...and sometimes, just a good cry helps even more... ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: |
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#7 | |||
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Grand Magnate
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Quote:
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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